Hello all,
I had my 2 monthly scan on Saturday and went for my review today. Sadly I'm out of the "stable mable" group for now. I have my last immunotherapy tomorrow as my tumours have grown. Not the news I wanted to hear. They have said I can have radiotherapy to my chest and right lower lung and it won't be as harsh as my previous radiotherapy to my throat. I will have pain swallowing, which is really worrying as I've gone under 50kg and have difficulties with swallowing as it is.
I'm due for surgery on 25th which I've been waiting for over a year because of Covid! This will be to make a new airway so I'll be able to breath through my nose, taste and smell again. I was so looking forward to this but the news today has put a real dampener on that now. I'm trying to stay positive as the consultant has said if the radiotherapy works there might be a chance of resuming treatment.
Has this happened to any others on here? Did your immunotherapy start again?
Thanks,
little-fi xx
Thank you I have just had the second treatment and it is the waiting and worrying beforehand which is the worst?they changed the times for me to the mornings so I don’t have to worry all day.
the mask was very tight the first dose yesterday but it was more comfortable today xx
i am still taking lorazepam beforehand and that does seem to help with the anxiety xx
Ruth
That must be so much better for you Ruth, we are all cheering you on from the side lines xx
Hi Little-f
So glad that you are getting it all sorted , I myself haven't had Radiotherapy that's not something they have mentioned before, but they did last time I saw my oncologist said it would help with the pain, so I am happy to give it try if it helps.
Good luck with your forth coming op too hope all goes well
Take care
Jimbobs
Thank you and liitle-if.
I am finding it tough but it will soon be over xx
Ruth
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