Immunotherapy halted half way through

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Hello all,

I had my 2 monthly scan on Saturday and went for my review today. Sadly I'm out of the "stable mable" group for now. I have my last immunotherapy tomorrow as my tumours have grown. Not the news I wanted to hear. They have said I can have radiotherapy to my chest and right lower lung and it won't be as harsh as my previous radiotherapy to my throat. I will have pain swallowing, which is really worrying as I've gone under 50kg and have difficulties with swallowing as it is.

I'm due for surgery on 25th which I've been waiting for over a year because of Covid! This will be to make a new airway so I'll be able to breath through my nose, taste and smell again. I was so looking forward to this but the news today has put a real dampener on that now. I'm trying to stay positive as the consultant has said if the radiotherapy works there might be a chance of resuming treatment.

Has this happened to any others on here? Did your immunotherapy start again?

Thanks,

little-fi xx

Norberry over 2 years ago

I am gutted to hear this news little-fi.

I have no knowledge of immunotherapy but the possibility of future treatment for you does provide some hope.

Best wishes for the 25th. Xxxxx

little-fi over 2 years ago in reply to Norberry

Thank you for your best wishes Norberry, I’m gutted too but hopeful as ever.

I hope you’re doing ok! Xx

anndanv over 2 years ago

Hi Little-fi, This is news we don't want to hear but I hope the surgery and radiotherapy will make a difference and you will be able to resume your treatment. Sorry, I have not had immunotherapy but I'm confident those who have experience will post soon with some positive news for you!

Yes, it is good you are staying positive because it sounds like your oncologist is. I don't think your consultant would have mentioned possible going back on treatment if there wasn't a good chance this could happen! I will be thinking of you. Sending a (((hug)))

Love Annette x

Yesterday is History, Tomorrow is a Mystery, Today is a Gift!!!

Popgate over 2 years ago

So sorry to hear this news but there is still hope and stay as positive as you can be huge hugs hugs and hope everything works out for you on the 25th xxx

Flippen

Tony73 over 2 years ago

Thoughts are with you. Im like you. It doesn't mean i give up. Far from it, im just trying to take each day, enjoy it and leave the crap pain benind.Take care

Popgate over 2 years ago in reply to Tony73

Well said Tony73 that's what we all try to do

Flippen

Himalaya over 2 years ago

I’ve just been reading your profile. Dear God, how on earth have you coped with everything…..you sound a remarkable woman . How do you deal with the anxiety of it all.

this disease really is awful isn’t it?

take care

little-fi over 2 years ago in reply to anndanv

Thank you so much Annette, I do hope I have the chance to get back on it!

Hope you are keeping well xx

little-fi over 2 years ago in reply to Popgate

Thanks for the hugs Flippen, it's good to talk to people who get it! xx

little-fi over 2 years ago in reply to Tony73

The pain we can't get away from Tony, I hate the saying "It is what it is" but find myself saying it more and more!

Thank you. xx