Hi Everyone
I have stage3 NSCLC lung cancer which is incurable so no more treatment, over the last few weeks l have had shoulder pain which is new for me l have been taking my pain killers which don’t seem to be working.. I have a phone appointment on Thursday with my consultant to talk about my scan results with her which am really scared about and now with this pain in my shoulder which as just add to my worries, I want to go back to work but I don’t think she wii let me if I tell her about my pain but I know I have to tell her am just so scared.
Thanks
free 12 xx
Hi
That is a blow - waiting is horrible. I too am awaiting CT results from 2.5 weeks ago - was told Easter hols have delayed things. Like you, not thinking about it is helpful tactic. Deal with what the day brings and let the rest take care of itself!
Hi ownedbystsffie
i know it’s the waiting that’s the killer so To take my mind off the what if, I have had our Grandson for a few days which has been great but now he has gone home for his mum (my daughter) to get him back into his routine for school after being with his Nanny .
Thank you
Fee12
Hi Free12, The one thing that will take your mind off cancer, scan results etc is a grandchild! It is great you have managed to have him for a few days! How old is he and do you have other grandchildren?
Good luck for Thursday and I hope your results are ready and positive!
Love Annette x
Hi annedav
he is 5 years old he is so good when I have him,I also have a Granddaughter but I don’t have her as she is only 11 months old and I know that I couldn’t cope with looking after her which breaks my heart as when Dylan was born I use to help look after him while my daughter was at work. As I worked shifts
Thanks
free12 xx
Hi annedav
he is 5 years old he is so good when I have him,I also have a Granddaughter but I don’t have her as she is only 11 months old and I know that I couldn’t cope with looking after her which breaks my heart as when Dylan was born I use to help look after him while my daughter was at work. As I worked shifts
Thanks
free12 xx
Hi Free12, I think 5 is a lovely age. I have 2 granddaughters one is 6 the other 9 and a grandson of 6. When I was diagnosed the eldest had just turned 1 year old and never in a million years did I expect to be here to see her start school! Now the youngest started school last August and I'm so lucky still to be here. The oldest one is the only one I managed to look after when she was a baby but they don't take long to grow, as you know, so hang in there, once she starts walking, things get a lot easier!
Love Annette x
Hi Annedanv
i hope so as at the minute I can’t manage her as she is crawling, am fighting all the way it’s just hard as I keep asking about different treatments and all my consultant says not suitable which is hard when you read about it then you thick to yourself why what are you not telling me.
Thanks
Free12 xx
Hi, When you go on Thursday, make sure you have written down ALL your questions to ask while you are there! Don't miss anything out that is on your mind. If I was you, I'd be asking things like; Why does she want to check for lumps and veins showing? Would you not have noticed these yourself? How do you check yourself in future so they get caught early? Is there anything you have not been told because you want to know? What is the plan of treatment she has in mind?
When I was first diagnosed, one time when I went to the Oncology Clinic for my 2nd appointment, I went armed with a notebook with 14 questions on it and a pen to write down her answers. Before I started I told her I had lots of questions since the first appointment and if she thought it would take up too much of her time, then I could leave it with her and she could answer by email. She said this is your appointment and take your time and ask away! Every appointment after that, she waited until I got my notebook out, then we'd start. I still do that, years later! Good luck. Please use this appointment to find out exactly what you want to know! She should have all the answers as she is in charge of your care! Good luck!8
Love Annette x
Hi Free12
I’m sorry you are having such an anxious time but if it’s any help, in my experience the doctors rarely withhold any information so it’s unlikely there is something she is not telling you.
I know it’s easier said than done but try to just concentrate on enjoying your grandchildren.
Take care
Patmart
Hi Everyone
Well d- day tomorrow so I have my note pad out with my questions in it. I just hope that they answer all my questions as in the past I have felt rush at my appointments. I just want to know why is it when I ask about new treatment am always told it’s not suitable.
Thanks Everyone
Free 12 xx
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