My brother in law was diagnosed with Lewy Body Dementia at the same time as I was diagnosed with incurable but treatable metastatic cancer. It was estimated that he would need full time residential care within 4 years. My prognosis after gamma knife surgery to a brain & skull tumour was 6-18 months, possibly 2 years.
That was a year ago. My BIL died last May aged 70. He went from an emergency admission to hospital into respite care & then full time care in the first 3 months of last year, & by that time we were in lockdown. Difficult times.
I signed up for the Memory Walk before I needed a wheelchair, so wasn’t sure if it would count, but it is a workout, I was knackered after the first leg yesterday. No doubt it’ll get easier, looking forward to the next bit already. I’ll post photos & updates here so I don’t highjack another thread xx
We’ve finished!!! Didn’t take Sula today as she doesn’t like the heat. My friend came up from Cambridge to ride shotgun (allowed because of my prognosis) I bumped into my karate sensei & it turned out Carrie knew his son, they worked together at Aviva for years, small world. Everyone was relaxed & kind, we thought the coast would be too busy & apparently it was mobbed so good call. It’s been a massive learning curve & there were tears today when I lost control of the chair, but I nailed reversing by the end of the day 
So grateful for support, the sponsors, the opportunity to be out and about in a stunning location. Absolutely knackered now and planning a few quiet days. Nearly 40 miles & £3500 Speechless xx
Don’t worry tvman we’re going to have a quiet weekend xx
