Health select committee tomorrow

Thanks ruthjp. It was quite nerve wracking, especially when the MP asking the questions first tried to move on without talking about limbo and I had to butt in. I think the points I raised changed the conversation, especially about technology and telephone consultations. Anyway. It was worth doing, I think. 
xx

Thanks Gragon . I felt I had to say something about shielding and I am glad I did. I don’t think Mr Hunt liked my impassioned contributions. They seemed to make him uncomfortable. Which was fun. 
xx

Thanks Daloni for everything you do you are an inspiration. 

Great job daloni, I think you will be off someone's Xmas card list for interfering with their line of questioning, you seemed to had forgotten who was in charge for a moment!

 You will have made a big difference I am sure, I am useless at technology but I think you should get your kids to make your contribution go viral.

I had just become familiar with your real name, now I have to learn it again.

daloni for Health Secretary.

Well done - you simply are fab - inspirational - just finished watching

Debs

Ha ha, yes you are right Norberry. I did forget who was in charge. Yes my real name is daloni but it’s not pronounced to rhyme with baloney. It’s pronounced more like Melanie with a d. I did tell them but some people just don’t listen. 

Hi Daloni

i just watched you on the i player.I was pleased I found it usually I’m rubbish at finding things.

i just wanted to say you put over exactly how I felt this last three months.Not knowing about the

treatment and when it would start again.The same as you I knew that some of my cancers are 

growing.I did get upset because you try and take it Day by day.Anyway thank you for getting the 

message across.

I have been offered chemo now and should start next Thursday.Fingers crossed.

i think you are marvellous to do this and you are going through treatment yourself.

    Bless you x

Hi

Just watched it, well done. I thought Charlotte A was great too. 

It does strike me that there's not much listening going on; questions abruptly end one train of thought that could be further explored... Wonder what they really take away from it! Be interesting to see if his report actually reflects some of the strong views described. 

For an MP who was young, seemingly fit and not (I assume) in an at risk group to say she had fear about turning up for a simple screening procedure confirms my view that there is a big gap between the (worried) well and those with significant health issues and it's very difficult for the former to understand the latter. A frustration as I also feel very strongly that so many decisions were made about covid measures by healthy people with no real understanding or insight as to what ill health is really like but seemingly filled with terror at being  struck down by a monster virus. Demonstrated nicely by the lack of acknowledgement to your statement right at the end about shielding. You could have said you were crushing grapes under your table with your toes and a small hedgehog and his (JH) reaction would have remained the same. 

Got to hope for some of it to sink in so well done for speaking up. 

Lots of love

Dear daloni,

 Again you are so brave and truthful in a crazy time you are a rock. Congrats on getting out there and speaking for the patients.

Hugs xxx

Hi Darling, 

firstly thank goodness your video wasn't upside down, lol,

Secondly well done you, you put that very eloquently, for all of us in this situation,  phone consults are not good enough, especially when they don't listen to what your saying,

I was told the other day to ring 111 and get a emergency Dr appointment to put my mind at ease, I don't want to have to explain to a Dr I don't know what's going on, but saying that I rang my own Drs at 9am and had a phone call back at 5.30 pm, to bloody late, I don't know where we cancer patients can go or call,  

I really have come to the end of my teather,  

But on that I will end this mini rant and say again WELL DONE 

Love Max xxxx