YOU NEVER KNOW THE MINUTE!!!

Hi lass

i understand how weight is an issue. I was tiny but thanks to cancer and eating like mad during chemotherapy i have increased gradually and am now trying to lose rather than gain weight .i am not physically disabled but not as active as bc (BEFORE CANCER ) 

I now go to a class run by the council for ladies who have had or still have cancer ,it is fab ,who knew you could do so many things with those stretcher pieces of material ? 

Keep active 

positive thoughts 

janet

Hey Janet, 

I just bought some of those stretchy things as it looks like they'll be used in my routines. Also got some of those ankle and wrist weights.

However today I'm not doing any routines because I've been attacking my attic bedroom. I think a heart rate of between 180 and 220 for 3 hours is enough of a workout for the day! Lol

Turns out I need tape to secure the carpet down, so I've ordered that from Amazon. When it arrives I'll secure it all down so there are no lumps and wrinkles, then tidy up the edges. 

But I'm pooped! 

Lass

Xx

Wow, Lass , you really worked on that bedroom. I love your helpers.

And yes, I am moon-faced and puffy. I had lymphoedema anyway, but now

I have a little reservoir above my collarbone and a swollen belly.

Trying hard not to overeat. Succeeding about half the time. 

Wonder what happened to my will power?

Hi Lass   Yes that's the dose of vitamin D I take also but without the extra monthly one. I have been taking it for quite a few years now. My oncologist insisted I got tested, she said anyone with Melanoma or indeed any kind of skin cancer should have their vitamin D level checked. I wonder why you weren't told about your cholesterol level at the other clinic, that seems very strange as it's so important to keep an eye on it! Good for you speaking to your GP about it. I have a terrific GP and feel free to ask him about anything!

Well, I'm afraid I didn't make it to the school Fayre last night and won't make it to the Marie Curie Christmas Fayre this morning either. I'm so disappointed. The surgeon did say on Wednesday that he had put a large amount of local anaesthetic into the wound during the op because he had to go in so deep and that I would know when it began to ware off! He  wasn't joking! Yesterday afternoon it was murder! It is also -5 here and the cold affects my arthritis! So decided to rest the extra couple of days and make a huge effort to go out with all the family on Sunday where we have been going the first Sunday in December since our first grandchild was born (she is now 7)! It's always been a fantastic day out followed by a meal out on the way home. We would have changed it this year to next weekend but my husband and I are going away Thursday for a long weekend!! So at least I've got a few days in between to rest. Stitches come out Wednes

 I had a few treatment breaks while on the drug (different to you) and at first I used to worry it wouldn't work if I had to stop it for a while. However it obviously didn't make any difference and I too used to look forward to some 'normal' time! Just enjoy however long or short your break might be!

ENJOY YOUR WEEKEND!

Sorry your shoulder is so painful. It will probably take a while to heal if it is that deep.

Rest as much as you can and go out after you have taken pain tablets.

i am now taking paracetamol regularly every day and it seems to control the headaches for now.

yes we have wills and POA but the joint account with my mother made life much easier as I could carry on using the account after she died.

i do want to change my will to leave a lump sum to each of my children so they won’t have to wait for it and my son could put it towards buying a house without paying inheritance tax.

we have lunch out tomorrow with our daughter and her fiancé and his parents plus our son is driving up from Oxford to join us. He has got a new job at UCL and will be moving to London in the New Year.

Love Ruth x

Hi Ruth, I am also taking paracetamol regularly now since I can't take anti inflammatory drugs (because of the liver) I think the oncologist once told me they increase the effects of the Morphogesic, so anything that helps!

Yes it's a good idea to get everything sorted, it certainly gives you peace of mind, knowing your children won't have any hassle once you are not around!

Just to let you know, the lump was at the bottom of my shoulder blade, more on my back than shoulder! Yes it's certainly painful now, much worse than yesterday but I'm sure it will calm down soon.

Your lunch tomorrow sounds lovely and the fact your son is driving up too, will be the icing on the cake! It's great he has a new job but how does he feel about living and working in London! It's very expensive but I'm sure he will enjoy the buzz down there!

Enjoy lunch tomorrow. Thanks for your concern.

 I'm so sorry, I must have misread your post. I hadn't realised you had come off Pembro altogether. A break is maybe just what your system needs. There are other immunotherapy drugs around and maybe your reaction to them may not be as severe. It's a bit of trial and error! Have they mentioned any other treatment or change of drug yet? I hope things settle down soon for you. I just hated being on steroids, although they worked well, I always felt they were kidding me on that I was better than I was because as soon as I started to reduce them, it wasn't long before I felt yuck again! 

Oh, that's ok, anndanv  I probably wasn't clear. 

I had my latest scan results on Monday, and my lung mets have grown, in spite of the Pembro. It may have slowed the progression - there's no way to tell - but it wasn't stopping it. That would have disqualified me from the trial even without the colitis.

There aren't many treatments out there for triple negative breast cancer that has proven impervious to chemotherapy, as mine has. But there is research. My docs are considering a new trial for me - plasmaMATCH. I'd get Olaparib in combination with something new that only has a number. 

I hope you're well enough for your family day out tomorrow. It sounds like a lovely tradition. Fingers crossed.

I 've not posted much --last time i did , not sure where my message went.

I  have Metaplastic Triple Negative Breast Cancer,  Found in  Aug 2017  i had 12 Chemo sessions --it had doubled in sze.

Next came Mastectomy  Jan 2018 , followed by 5 weeks of Radiation.  Finished and all seemed O K went to my sons

in France for a month over Christmas. (also celebrated a BIG birthday).

Taken to A & E March 2019 suspect Appendix-- they found the Cancer had gone into my lungs. That was 6 months ago waited for

a couple of months it was growing, i was hoping to go on the OLAPARIB + TRIAL i was turned down as i am on heart meds.

I started on Capecitabin 3 weeks on 1 off, i have been taken off it as my hands were very bad with Neuropathy  and it is

very difficult to live with, thank goodness i can still drive.

I see my Oncologist on Monday Dec 2 wondering if there is anything left to try, Metaplastic  TNBC cancels lots of meds

as you know. I will be interested in anything they try for you.

Will look for your new postings Hope you find something soon.

C J

Hi I'm sure it was more my fault than yours! Anyway what a shame Pembro didn't do its work for you. It's good your docs are looking into a new trial for you! When I started the trial drug I was on, it only had a number before they named it Dabrafenib! It doesn't really matter what they call it, as long as it works it's magic for you, which I hope it does!

Yes, it is a great day out. Aaalthough when you say Garden Centre I think it gives the wrong impression, as this is much better than that. You can have a look (if you can be bothered) at Google. Gouldings Garden Centre Carluke. I'm obviously not going to get much sleep, as usual, but we are definitely going in the morning, our grandchildren (& me too) are very excited!