Scared of what i might hear.

FormerMember
FormerMember
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Hello

I am seeing my Consultant tomorrow evening for the first time since she told me my bone cancer had now shown a met on my liver. She  changed me on to Tamoxifen which I started yesterday.  I have scared myself to death reading about what to expect and the comments left on the seco dary liver group on here.  I have a slight ache in my abdomen so need to discuss that. Also need to know about other treatments although she did mention oral  chemo.  I really really dont want to have this conversation tomorrow and am feeling really stressed. I dont think I will sleep tonight.  Some people are very brave, I am not one of them. Hope you are all as well as can be x

Ellie

  • FormerMember
    FormerMember

    Hi Eilleellie I hope it all goes well for you tomorrow.I know what you mean,I read people stories on here and can’t believe how brave everyone is.My appointment isn’t till Oct 21st but I will be dreading just like you.I had a ct scan last week and will find out the results then.

    I am just going on holiday which we booked last year.I finished my 4 round of chemo the end of August.So the consultant said it was ok to go.I will pray for you for good news.xx

  • FormerMember
    FormerMember

    Ellie, I'm so sorry to hear this, it's always a shock to hear that there's been disease progression. This bit is the worst, when your fears are sky high and you can't see a way forward. I hope your Consultant will have a clear plan for you today.

    I was told in Feb that I had a liver met, and started oral chemo. It's taken some months to find the right dose, one I can tolerate that is also keeping things stable, but I can honestly say the met itself hasn't caused any problems. Many on this site reassured me at the time that they were living with liver mets and it wasn't the bleak outlook it once was.

    It can be very useful to read about other people's experiences, but you are unique....and this is all about you now. 

    I think you're very brave for your honesty in expressing your fears. 

    "Can a man still be brave if he's afraid?" 

    "That is the only time he can be brave" 

    That's a quote from A Game of Thrones, never seen it or read it, but it fits. You're scared to death and stressed, and yet you'll go to your appointment and hopefully find out just what you're dealing with, and I'm guessing you'll follow the plan even if it's daunting.

    Trust me, you are brave. I'll be thinking of you today, sending you a big hug xx

  • FormerMember
    FormerMember in reply to FormerMember

    Here's another one for you Ellie, and all of us dealing with this.

    Scared is what you're feeling. Brave is what you're doing. xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hello

    Thanks for your reply.  It gives me hope when I hear of other people in the same position.  I often think why me, and then I think why not me. I went for a walk this morning with my dog Molly through the woods.  The sun was actually shining and I could hear the leaves falling down around me. I turned a  corner and the path was covered in orange hues with the sun bouncing off them and crunching underfoot. I suddenly felt aware of myself and my love for life. Whatever tonight brings, i am not ready to give up yet i have too many sun filled days yet to live and i know some rainey days as well. Happiness is a state of mind and we have a choice,  

    Ellie

  • FormerMember
    FormerMember in reply to FormerMember

    Atta girl Grin

  • FormerMember
    FormerMember in reply to FormerMember

    Ellie that looks wonderful, best of luck with your appointment today, hoping it is better news than you expect. A lovely walk with your dog (I’ve got a spaniel too! ) always makes the world a better place, love heather xxxx

  • FormerMember
    FormerMember

    Hi Ellie 

    Another quote for you, I hope it might help - just a little....

    “I learned that courage was not the absence of fear, but the triumph over it. The brave man is not he who does not feel afraid, but he who conquers that fear.”    Nelson Mandela

    I have never felt such fear as the events that led me to this forum, but I have also never previously encountered the inspiration or courage that people here present on a daily basis.  

    Best wishes

    Brian xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Brian

    Thank you for the quote.

    Ellie x

  • FormerMember
    FormerMember in reply to FormerMember

    Ellie - you’re more than welcome! Old Nelson has made one or two absolute belters!

    I’m sure we’re all scared (I know I am!)

    Coming here helps me immensely

    big hugs xxx

    Brian

  • hi I know being scared and everything else that goes with it you stressed all the time and worry fils you up and you don't eat my best friend checks me bin and me freezer seeing how much food I have thrown away my best friend keeps telling me how brave i am dealing with everything in my own way you are brave too I also have ach in abdomen too dreading my scan as everybody knows on the as I think the worst it's got worse has  mine has spread to liver on last scan you trust me are brave you are one of them keep fighting like mad I know I am I am here if you need to chat good or had or scream and shoutxxxxx

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