Hello All, haven’t posted anything in a while but have been keeping an eye on a 
I had to stop oral chemo because of complications and had a month without it. I restarted a month ago on half the dose. Same side effects but not as severe, and I felt I still had a bit of spark.
On Sun I was admitted with pleurisy, pneumonia & a small pleural effusion. A DNR was put in place, and things once again seemed pretty bleak. The hospital Oncologist said the cancer was progressing with widespread metastasis throughout my sternum & spine.
I saw my own Oncologist today, yesterday’s blood showed the cancer markers had come down a bit. After a long discussion it was decided to try again with a half dose of oral chemo (chemo light someone called it!) starting next Fri to give me chance to recover a bit, and repeat scans in Aug.
A couple valuable lessons learned,
Some of the things I thought were ‘in place’ weren’t actually recorded anywhere
My sons, who seemed so calm & to be coping well, have no recollection of our conversation about a DNR order earlier this year.
They were shocked, and one of them asked if he could over-ride it. They thought it was a long way down the line and just put it to one side
A strategy that’s given to alcoholics in crisis, what do I have to do to get through the next 15 mins/30 mins/hour worked really well
I’m sure my funeral arrangements are right for my family and friends
Theres no place like home 
xx
Hi Daloni,
It crept up on me, and then turned into a medical emergency in the space of a few hours. Then there was the realisation that this could be it.
There was an equally scary event on the 2nd night, when I realised the lady opposite was having an altercation with our bank nurse. She was trying to connect an IV line that had a couple of inches of air in it. When the patient protested the nurse tried to shake the air out, and dropped the line on the floor. She still wanted to connect it. The sister who came to sort it out didn't appreciate the full story, and wanted to replace just the last link in the line. I was frantically signally to the patient that the whole lot including the bag was contaminated, no 5 second rule here!
The bank nurse came in later, stood in the middle of the room and challenged us. She said she knew her job and it was important not to tell lies, at which point another lady was in tears. The shit hit the fan in the morning and the bank nurse is toast.
As one of the ladies said, if you saw it in a soap you would think it was too far fetched.
I'm so much more comfortable, having lots of lovely bubble baths! Have lost track of the Meet Up thread, but hoping that will come off, wouldn't that be lovely 
xx
