Hello All, haven’t posted anything in a while but have been keeping an eye on a
I had to stop oral chemo because of complications and had a month without it. I restarted a month ago on half the dose. Same side effects but not as severe, and I felt I still had a bit of spark.
On Sun I was admitted with pleurisy, pneumonia & a small pleural effusion. A DNR was put in place, and things once again seemed pretty bleak. The hospital Oncologist said the cancer was progressing with widespread metastasis throughout my sternum & spine.
I saw my own Oncologist today, yesterday’s blood showed the cancer markers had come down a bit. After a long discussion it was decided to try again with a half dose of oral chemo (chemo light someone called it!) starting next Fri to give me chance to recover a bit, and repeat scans in Aug.
A couple valuable lessons learned,
Some of the things I thought were ‘in place’ weren’t actually recorded anywhere
My sons, who seemed so calm & to be coping well, have no recollection of our conversation about a DNR order earlier this year.
They were shocked, and one of them asked if he could over-ride it. They thought it was a long way down the line and just put it to one side
A strategy that’s given to alcoholics in crisis, what do I have to do to get through the next 15 mins/30 mins/hour worked really well
I’m sure my funeral arrangements are right for my family and friends
Theres no place like home xx
Sorry it's been so rough. I hope you are feeling a little more comfortable and calm. Big hugs xx
I think sometimes people are insensitive because we hide how s*** we feel. I’m thinking of starting a thread about what to say to people and how to deal with the things they say to us. I’ve never heard of 3-D lipstick but it sounds like fun.
That's true Maybug. I do believe that often false reassurances and minimising our problems are peoples way of coping, and generally well meant.
Please do start that thread. It does help to have to have a few well prepared answers to shut down unwelcome or intrusive attention.
My brother once said, be wary of people who just want to be part of your drama, I now know what he meant.
None of this is unique to cancer sufferers as anyone who's suffered a bereavement, redundancy, marriage break up etc will testify, but thoughtless comments as well as being hurtful, are energy vampires!
3D effect lipstick really is good fun!
Good advice about having answers prepared. I’ve got a few on hand. I don’t tell people I don’t know well any more than I have to.
Whatever cancer throws your way, we’re right there with you.
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