Three Good Things

Hope everyone has a lovely weekend. Three things

Scented daffs in garden

Going to buy tulips from a community group this morning

Toots the canary is in good voice this morning

Love

Claire x

My three good things from yesterday 

1. My daughter spent a morning at the sewing machine making scrunchies. I do lots of sewing and it was nice to pass on some skills 

2. A delicious lunch of bread and hummus and other bits and pieces 

3. We went to see a silly action adventure comedy film called Shazam. It was completely daft and it cheered me right up 

have a lovely Sunday 

xxx

It’s been a strange week of ups and downs.

Sadly the little family of Robins that have kept me going through the worst days this cycle had a cruel end. Finding and having to clear them before my grandchildren did was so hard and made me question yet again Why? Why when I try to find good it’s dashed.

Yesterdays three:

I felt safe enough to drive my car and go to Sainsbury’s for first time in two weeks. It really tired me but I don’t feel so imprisoned.

I spent the evening in Talin Estonia - well looking at last years photo’s. So many places I had intended visiting this spring that will have to wait,

My youngest daughter made me chicken soup. My mother would’ve proud of her as I am.

Sorry my good things are tempered but trying to get up from yet another knock down.

XX

Hi

I am sorry to hear you are struggling. Please don’t feel you have to apologise. That’s really the three good things is for - helping us to remember that there are good things in every day even when all seems bleak. It’s easy to do when things are good. Not so easy when it’s been a difficult time. 

So today I’m having a tough day too. My younger daughter is on a plane to Serbia to go to her dad’s wedding. I’ve just had “mixed” scan results (see separate discussion I just posted). And I’m still waiting for my chemo. 

Focus. 

Three good things. 

1. I jspent an hour this morning  talking to a woman from Macmillan who is working on a project about how Macmillan should meet the needs of the increasing number of people living with treatable but not curable cancer. Very interesting and potentially important project and I’m privileged to be involved 

2. A nice nurse just sat with me for half an hour and listened to my troubles. It was good to offload in person 

3. My older daughter is in a mood to pick up some skills. This weekend she learned how to use the sewing machine and made several scrunchies. Next step pyjama trousers. This evening I’ll teach her how to make tagliatelle with smoked salmon and cream. I’ll make a domestic goddess of her yet. 

Do you know what? I actually feel better for doing this. 

Love to you all

xxx 

Daloni - I'm glad you feel better for writing these but do you know what? I bet you'll feel even better later; I really wish my mum had shared her sewing skills with me (she sweeps in and does all the jobs for my kids that I'd like to be able to do and is teaching my eldest to knit and I can only watch on jealously - I am trying to learn...) AND I wish she had taught me to cook (I've had to learn to do that myself). Those Daloni are precious, precious gifts for your daughter so please feel proud and enjoy every minute of that time together - she will always have the gift of knowing you passed on those skills. 

I too am having a chat with Macmillan tomorrow about that project - you've given me a sense of excitement now. 

My 3 good things today:

1. The meds seem to be helping my energy levels pick up since discovering an underactive thyroid - hooray for starting to feel more like me again.

2. Booked a holiday in half term - looking forward to a lazy beach and book combo. 

3. Was discharged by the psychology team as my clinical psychologist is leaving - nervous I won't manage but I'm going to try for a while to put some of that resilience she says I have into action... 

You are an amazing woman Daloni. If you can post 3 good things, today, when you're taking a physical and emotional battering, and feel better for it.....I know you've heard it before, but you really are inspirational. 

Sounds like we're all having bad days. Our lovely neighbour sobbed in my arms yesterday as he told me his wife of 53 years had died of a massive brain haemorrhage. We've been neighbours for 25 of those years, so there's been a lot of water under the bridge. She was so kind and concerned for me, and seemed to be in good health. I feel guilty.

3 good things today

Managed to get a phone appt with a GP (the earliest face to face appt is in 3 weeks) She prescribed stronger anti histamines for the rash   I'm covered in since starting oral chemo, and sleeping tablets to see if I can establish some kind of sleep pattern.

Spoke to a friend who lives alone and has cerebral palsy. I used to visit her every couple of weeks, and was worried about how she was managing as I've not been able to see her for a couple of months. She sounded great and is feeling very well.

Spoke to my twin sister, she's been struggling with her weight but absolutely loved the outfit I bought for her at York market

One more thing, today for the first time I realised the importance of finding the 3 good things on the tough days. Daloni, can I pm you? 

xx

Hello all sorry that some of you are struggling at the moment. I've been feeling a bit sorry for myself lately so I this will be good for me. 

Finally we got someone out to look at our gates. 

After a few sleepless nights and feeling like a zombie I managed a lovely nap this afternoon and have woken up feeling much better. 

My lovely OH has pulled a homemade chilli out of the freezer to save me having to go to the shops for tea stuff 

Hi Daloni

I’m sorry to hear you are feeling down when you cheer us up so much. Also that your scan results were ‘mixed’.

Did you get your chemo? Is it your last cycle? I can’t find the other discussion you mentioned. 

I was frustrated today. The day before I started the trial I was told - in a not too caring a way - that they were fitting a PICC line. It threw me as I had had no warning and was being told that yet another part of my life was being taken away - I love swimming. Two out of three weeks it’s flushed etc at the hospital but this week I have to have it done near home. My lovely doctor had said I could have it done at my surgery, then I get a call from an IV team to say it has to be done by them but I can phone the day before for an appointment. Then when I phone 4 days in advance I’m told there is no clinic the day I need it. Then today I wait for someone to call and come round - lovely sunny day, feeling well enough for once to go somewhere but sit waiting around till 2.30 to be told by lovely IV nurse she could have done it at 8.40!

OK moan over!

1. Feeling more like my usual ‘since having cancer’ self!

2. Plan to do something tomorrow that’s normal.

3. Really liked the IV nurse and talked over the benefits etc of a having a port. I’d already looked into this and if all goes well over next few cycles I’ll definately push for one to be fitted as after the 6 cycles I still need maintenance cycle every fortnight. But may not get that far so will wait.

Really hope you’re more cheerful today and your daughter will be home soon. Well done for passing your talents on. I’ve tried teaching my daughters and grandchildren knitting but  with no success.

XX

have you asked about a port? I have one and they are brill!

My 3 good things

So i used to be a runner and ice accepted the fact that i wont run again, so instead i managed to go on a very very tiny bike ride!! The grin on my face was epic 

I watched the latest game of thrones

And i watcjed avengers end game. I know its not everyone's cup of tea but i loved it.

Hope the sunshine comes to stay for a bit longer 

X

Hi Button16

I’m glad to hear about a port from someone who knows.

I haven’t asked yet as I had a reaction to the Carboplatin on the second cycle and had to delay all drugs and then have it gradually and I am not even sure I’ll be able to manage the third cycle next week. I think I’ll wait until the CT and MRI after that to see if the drugs have done any good.

My son in law has lent me all the Game of Thrones series except the latest. Looking forward to making the most of ‘bad’ days watching them. I hadn’t really heard of it or was interested until I went to Dubrovnik last October. Sat on the throne on the island of Lokrum. Can recommend a city break there. So difficult to find places so central to travel to as I usually travel alone.  Even managed to walk round the city Wall although had plenty of stops. Some of the best days I’ve had in a long time. The weather was lovely though.

X