Three Good Things

Hi Daloni

I’m so glad all went so well for you.

A bit harder to find three good things for yesterday as I had a reaction to the Carboplatin and it took some time to get me stable. But:

I survived

I am able to try again tomorrow with a slower or reduced amount.

I saw the Robin going into the nest in my tree. I saw both on Sunday and was pleased as I thought I may have disturbed them nest building when I first spotted them. Robins mean so much with memories of my father. I often see them when I’m needing some reassurance.

XX

Hi

I am sorry to hear about the carboplatin reaction. I hope it goes better tomorrow. 

Oddly enough I was reading something about robins this morning. A tale from another bereaved daughter who was saying that in some cultures robins signify loved ones who have died and revisit to tell their relatives that they are ok. So to read that you too think of your father when you see a robin puts a new thought in my mind as I look at the robins here. 

I am having a sofa day today. Where’s my steroid bounce? 

So three good things: 

1. I have a nice view from my sofa for my sofa day, looking out to my beautiful garden

2. I had a nice brunch with my youngest. Toasted sandwich with spinach, mushrooms and cheese

3. Sofa day today, hopefully more energy later in the week when I have planned days out. 

Xx

Better news today

1. No delays on motorway today, after being delayed Monday for over an hour so better start.

2.With one to one care today Fantastic nurse caught reaction before i even began to feel it and stopped meds straight away so after an hours delay and reducing meds I finally managed to finish full dose.of Carboplatin. No problems with second drug immunotherapy Avulemab so although long day 8.30 to 6 successfully received all drugs and obs ok.

3. Lovely spending day with eldest daughter and second daughter staying night to keep an eye on me!

Back tomorrow for last trial drug. Feeling positive.

That’s great news,

Your daughters sound lovely. 

I’ve had a better day too.

1. I had a short cycle on my electric bike. Such fun! 

2. The sunshine on my face

3. Supper with a friend 

xx 

Started feeling rotten last week, worse day by day. Concerned by a pain in my chest went to GP who ordered scans.She thought I might have a clot in the lung. None visible on scans. Much relieved to not have a clot but continuing to get worse, I went in again thinking maybe infection. Again none evident. She ordered more blood and an ultrasound, then commented on my way out: thiink we should have you see oncologist soon.

Cannot settle. 

Reaching, but determined to find my three good things.

1) Being sustained by you (plural) and your posts here and in garden thread.

2) My tulips have opened!

3) Went out with husband in car and saw lambs at play.

Sorry. Tempted to delete the beginning of this, but am a bit scared and do not know who could possibly understand this better than you (plural once again.)

Hi

I am not surprised you’re scared. You must be feeling rotten. I’m so sorry. Would a virtual ((((hug)))) help? 

I’m up with insomnia. The steroids failed to deliver the customary post treatment bounce on Tuesday after Monday’s chemo but that hasn’t stopped the sleep disruption. Boo! Yesterday was a better day though as some energy returned  

My three good things from yesterday: 

1. A short walk with picnic with my girls in the bluebell woods. It’s not peak bluebell just yet but getting there. We ate our picnic on a bench with a staggering view from the North Downs right across the Weald to the South Downs and heard a buzzard, woodpecker and chiff chaff. 

2. A friend made a lovely dinner for me 

3. My tulips are out too. One pot is purple and white, those in the border are bright orange. I’d completely forgotten what I’d put where so I’m enjoying the surprise too

xx 

Thank you so much for the kind words and hug. What a lovely list of three things. Holding your description of your picnic walk and view in my heart. Thank you.

Sending you as much strength as I can spare Ms Lin and wanting you to know you are being thought of.

I had another better day after Monday.

1. Good journey to and from hospital.

2. Managed third trial drug without incident - no name just a number at the moment! So all three drugs of second cycle now in hopefully doing something.

3. Feeling very proud of my 14 year old granddaughter who came with my eldest daughter today and sat with me and watched everything except ecg’s as curtains round for other patients. I think it’s good for them to see what they can so not to be afraid. She was even prepared to see me if I had another reaction.

Home now, exhausted but feeling good.

Big hugs to you MS Lin 

3 good things 

Despite there being some progression my ONC has decided to hang fire for now on chemo (last one before nothing left but clinical trials)

Out with my OH for tea and the flicks 

Gorgeous day and a few packets of chilli seedlings arrived mmm love a bit of spice 

xx

Hi Daloni

I’m sorry to hear of your continued insomnia.

I’m sure you’ve tried different things but if my mindfulness doesn’t work which it usually does, I take Zopiclone 3.75 and can take 2. I sometimes take them anyway on first few nights as I expect to have trouble sleeping.

I also found because I’d had reactions to the paxitaxel I was being pumped with loads of steroids and was having horrid nightmares.  I was prescribed Zimovane 7.5 mg, another sleeping tablet and it stopped them. Just don’t take both! I expect to need them again this time as being pumped again with steroids amongst other things!

Hope something helps.

XX