hello I was diagnosed with papillary thyroid cancer 19 March 2013
i still suffer with chronic fatigue and sleep a lot day and night and just don’t have much energy.
If there any bugs colds coughs etc I always pick them up and it takes so long for me to fight it and get over it and of course it leaves me even more tired. ( of course worried about this covid19 now)
i saw my oncologist in November 2019 who says my TSH no longer has to be kept suppressed and said he be happy for my endocrinologist to play around with my medication ( thyroxine and T3) to raise my levels up to a newer range and he said it might help with my fatigue ???? He not sure
is there anyone who 7 years after papillary thyroid cancer who had their thyroid removed who experience this fatigue. Will it get better??? I also have depression too
Thank you sorry for essay
Hi and welcome to the Online Community, although I am sorry to see you finding us and so sorry to hear about your ongoing fatigue challenges and for so long.
Your question is very specific to your type of cancer and medication so can I highlight our very supportive Thyroid cancer Group.
Posting in this group will open up your concerns to a wider group of people who know exactly what you are going through at the moment and some will have first hand expereance.
Follow the link I've created, join the group then introduce yourself to the group and post questions after selecting 'start a discussion' and you can also join in with existing conversations by clicking on 'reply'.
Can I also highly recommend our various Macmillan Support Line Services - you can call them free on 0808 808 00 00 This service covers some types of Clinical Information mostly open 8.00 to 8.00 but check the link and you may also find our Ask an Expert section helpful.
You may want to put some information in your profile as this can help a lot. Click here to see how to add details as this helps everyone to see a little about you and how best to reply to you.
All the very best.
Whatever cancer throws your way, we’re right there with you.
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