Hi , not this skin condition but yes to various skin issues. Cancer and chemo can play havoc with the immune system and the biggest organ in the body (skin) can react.
Incurable but treatable?..... have you see a Consultant Dermatologist for their opinion?
I think you do need to push for some other eyes to look at a way forward. It’s looks like it may calm down or go in 1-5 years!!!
Rituximab (A targeted (biological) therapy) could also be used if you have not had the life time dose.
Don’t accept that this is it - you do need to get a few opinions to make sure that all that is available is being done.
Having lived for 14 years with a presentation that was basically the same you need all that is available.
Did you actually see a Consultant Dermatologist?
Yes, Incurable but treatable from what I have seen in the short time I have looked at it...... steroids come on many forms - I was on steroids for my skin Lymphoma for many many years and lived ok...... are you using topical or oral steroids?
It is important that you don’t take this as life from now on - you do need to push some doors and look for other opinions as this brings a broader understanding how this can be treated.
I do feel for you 
It is so hard when it is visible and you have to try and ‘live’ as best as you can.
Lets look for the steroids to take control of this for you and move things in a positive direction.
Hi again, sorry I have no idea..... but you could put your question to our ‘Ask an Expert’ section where you can post questions to our mostly Volunteer Experts but please allow 2 working days to get a reply.
