Hi
I’ve not posted here before
i I have ovarian cancer aggressive stage 4 had debulking surgery which I ended up with an ileostomy just over 2 years ago, never really had a problem with any food never ate sweet corn, I’ve had a parastomal hernia for over a year and 2 incisional hernias
im getting ct scan results on Monday as I think the cancer which was stable in Oct has reared its ugly head
since about Nov I’ve had abdominal pain and pains at the back of my stoma this last few weeks have been worse and the last couple of days I’ve been near to tears with the burning stabbing sensation
anybody have any idea what this could be
tia Pam
Hi Pam ela and welcome to the group.
I’m sorry to read about the ongoing issues you’re having, and the pain. I have 2 stomas due to having had a total pelvic exenteration, but am fortunate not to have experienced parastomal hernias. It must be very difficult to live with these.
I don’t think any of us as patients in the group would be able to guess at the reasons for your pain, but I hope your scan results today can give you some answers and a way forward.
Sarah xx
Hi Pam
I’m really sorry to read this. I remember how I felt when I had my recurrence and it was a worse feeling than being diagnosed originally.
I hope you get some more news on the treatment you can have soon and that it helps. Indeed life can be rubbish at times, but we keep going.
Sarah xx
