Hello everyone
I hope you don't mind me posting here today, my name is Steph and I'm part of the Community team here at Macmillan.
I'm here to let you know that, in response to requests from members of the group, we've added this additional forum as a dedicated space for discussions around reversal and LARS.
We've moved over some recent posts around reversal and LARS into the new forum, which can be used in the same way as existing forums.
Please do get in touch if you have any questions or would like any further support. The easiest way to contact the team is to email us at community@macmillan.org.uk
Best wishes,
Steph - Online Community Officer
I am not sure if this is something readily available everywhere but I had a sacral nerve implant in 2018, after years of struggle with severe LARS and although it isn’t a “cure” I think it has helped me live a more normal life, at least to some extent. In Australia they are being used more widely, than before, but I don’t know that many people with one so I can’t say how successful they are across a wider cross section of rectal cancer survivors. You do need regular access to a good technician after the implant though as the settings do need updating and tweaking. It certainly isn’t the first option post reversal but if after struggling with severe LARS for 3 years post reversal I was willing to give it a go so it might be worth a conversation with your colorectal surgeon
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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