Stoma reversal

Hi Summer of 76 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

Thank you very much for taking the time to write about your experiences to date and I'm sure that others in a similar position both now and in the future will find it helpful.

I hope that everything continues to go well for you.

x

Hello Summer of 76.

Great year for me too!

Thank you very much for sharing your experience, I read but rarely contibute to the useful messages on this page. Thank you McMillan nurses!

Since March 2021, I have colon cancer and a stoma, which I was told at the time would be permanent and I finally accepted it.  . However, at my pre-op assessment last week , I was told that, as my body responded so well to the chemo and radiation treatments ( I was stage 4 with metastases on the aortic lymph node and other lymph nodes), I will have an hysterectomy (some organs were touching the tumour) and an ileostomy, instead of the stoma, during surgery on Wednesday 06/04/22. The surgeon may decide to reverse the stoma should all go well! That was so unexpected!

 I am aware that the rectum does not function as well as before and most people have issues- despite the exercises- with either incontinence or near enough, as they have to know where the toilets are wherever they go. I am not yet sure I will have a choice between "stoma or rush to the nearby loo..." but this is in my thought!

So thank you Summer of 76 for being positive about it! It does help! I am 65 years young and intends to make the most of my rebirth after the operation!

Lots of love

Hello Summer of 76 & Bri26,

Sorry for this late reply, I haven’t checked this forum for a few weeks.

I had my ileostomy reversed on 9/3/22 & thought I’d share how it’s been for me. I had LAR for bowel cancer in January 2021 with temporary ileostomy, followed by chemo (advised to stop after 5 of 6 sessions due to proctitis).

The first few days after the reversal were pretty grim and I did use incontinence knickers and had a very sore bottom (I used Water Wipes, Vaseline and Sudacrem).  However, after the first week I reverted to normal knickers, but had to go to loo very frequently.  I’ve been careful about what I’ve eaten and started with a fairly beige diet and am gradually introducing other foods so I can monitor if anything upsets my bowel.  Things now seem to have settled down dramatically and is very manageable (it stays this way).  Eating my main meal at lunchtime might be better but I choose to have my main meal in the evening (with family) and then usually have a few trips to the loo before bedtime.

I did do the sphincter exercises advised fairly regularly before my reversal which I’m convinced helped a lot.  Up to now, things have been so much better after the reversal than I ever imagined and so pleased I went ahead.  I’m also 65 years young!

Love to all,

Net xx

Hello all

I have not been here (this post) for a couple of years<so thought i might just log in and mention how things have progressed.

Pleased to say i am now back to going to the toilet normally,took a few months after reversal as my body sort of went into shock after a month or so from surgery<and it took me a couple of months to recover,fatigue,hard getting out of bed etc.But i had brilliant support from me other arf (bless her cottons).

You have to get use to going more often as i don't have so much storage capacity .But hey thats a small price to pay,i'm here and enjoying the eternal present moment (remember that's all there ever is).

I am sending healing thoughts to you all who are going through this different cancer thing .

Love to you all