Loop ileostomy

I also have a loop ileostomy - it's 6 years now and I had major issues in the beginning. Both parts were short and squashed for me and pancaking and leaks made things tough to deal with, but swapping to a concave bag solved the problems for me, so it might be worth a try?

Thank you Mandy, I have the concave bags and a belt, they both help but I feel like I’m fighting a battle every day. I’m only 4 weeks post operation, I think you’re right about one day at a time but some days are hard. Jill xxx

I remember that feeling really well - it took me a good 3 months before things settled down for me - I was constantly sore and struggled to sleep with all the leaks. 
I really hope things improve for you soon- 6 years on and I can eat what I want and have very few problems - so much so, that I decided not to go for a reversal.

Thank you so much for your support Mandy, I know I have to be more patient but it’s hard, I’m on my own now having lost my partner 3 years ago. Sometimes I just want to have a moan, sorry. Jill xx

Please don't apologise!!! We all need to moan and you are more than entitled to with all you are dealing with on your own!! This forum kept me going through some very dark days and nights - moan away!!! ️️️

Mandy you’ve made my day, it’s been so lovely to speak to you. You’ve made me feel so much happier, thank you. Love Jill xxx

I'm really glad - Always here if you need a moan xxx