New here, having permanent stoma op soon

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Hi, I'm due to have my op soon, which will result in a permanent stoma and a barbie bum. I know I will be able to live a perfectly normal life once I've recovered and got the hang of the stoma, but there is so much information to take in, and I'm trying to get my head around it all. I'm seeing the stoma nurse before the op and will be given more information then but I would like to ask those of you who have been through it already - tips of do's and don't? I've ordered a waterproof mattress protector and pads and I'm currently browsing stoma underwear. So much to take in!! Any advice?

  • Thanks for that. I normally wear high leg bikini type underwear but I might just get some cheap granny pants from Asda to start off with until I find what works for me, as you mentioned no point in spending unnecessary.

  • Thanks for that. I have the stoma nurse next Monday so will take onboard what advice she gives me. It seems like what works for one might not be necessary for another. Just so many practical questions but I suppose it's to be expected!!

  • The practical questions are absolutely expected when all this is new for you. I hope you have a good experience getting your questions answered by the nurse, but feel free to ask whatever you’d like from those of us living with stomas as we have the lived experience we are happy to share.

    Sarah xx


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  • Thanks Sarah, yes a lot of questions, my head is spinning, but I'm sure I'll get the hang of it. 

  • Hi.
    I treated myself to Wildblooms marks Spencer full knickers and bras matching. They made me feel my normal choice. Plus they’re quite luxurious. Didn’t need special knickers. 

    Good luck with your operation 

    Ann
     ‍Art

  • Hey! 

    I had my operation resulting in a temporary stoma three weeks ago. My wound isn’t healing very well because I am constantly leaking from my stoma. Any advice?  X

  • Hi Victoria41x

    Sorry to hear that your having issues with leaks. 
     Have you contacted your Stoma nurses?

    I too had problem in the first three weeks my skin was burnt with my flat stoma. 

    They changed my pouches to convex with an addition belt if needed and this was a game changer. 

    Six weeks I stayed away and didn’t look back. My stoma was more pronounced and the output went where it was meant to go. 

    Best wishes 

    Ann
     ‍Art

  • As Artsie has said.do contact your stoma nurse.stomas do change in shape and size over the first few months and sometimes the size of hole in your bag needs adjusting..

    Also different bags can be a game changer.even though my stoma is not flat but produdes well , a change to a convex bag worked well and I still use them 5 yrs on.

    Kath

  • A barrier spray is available to protect the skin before applying the pouch. It does not affect adhesion. Your stoma nurse will probably have to recommend it before it can be prescribed on the NHS. Mine did and it relieved the irritation until the skin healed. No longer necessary.

    Dulac

  • I agree with the advice to speak to a stoma nurse. In addition to barrier spray, mine also gave me a stoma powder. It improves adhesion in the area of the broken skin which helps prevent leaks and allows the skin to heal. I used it in the first weeks after my surgery. Once my skin healed it wasn't necessary.