Total pelvic extenteration tomorrow

  • 23 replies
  • 20 subscribers
  • 690 views

Hey, 

I'm about to have a TPE tomorrow after 11 years of various treatments related to HPV and then last year getting a diagnosis for vaginal Cancer for which I was treated with radchems.

I was hoping that would be the last of it for a while but then had the shock of being told it was back but this time to get clear margins I'd need a TPE.

I also found out last week my right kidney has shrunk as a result if the treatment so that's going too!

Needless to say it's going to big adjustment!

So any advice for those early days with an ostomy (or two) much appreciated.

  • Hey Susan,

    They did a scan a few weeks back, when I was readmitted to hospital and it was ok. My next one is booked for Jan / Feb along with an MRI.

    I had a extra week on oral antibiotics in hospital then a week on them at home. This time they have given me a topical one, although the heavy discharge means it's not staying in place for long. It's only day 1 but hopefully it helps.

  • Hi  

    Good to hear from you again-I hope this topical stuff clears things for you. I was put on Metronizadole I after my surgery but it made me feel awful so I got it changed to something else, but can’t remember what. It was in tablet form, and I tolerated it better.

    Since then I’ve refused to take metronidazole for anything so they try something else. I haven’t needed any type of antibiotics again in connection with my TPE but had a couple of procedures last year when I had a blocked bile duct and then surgery to remove my gallbladder. They came to me with antibiotics to be inserted in my rectum until I asked how they were imagining that would be possible! I wonder sometimes if anyone actually reads my notes! 

    Hope you’re feeling better soon.

    Sarah xx


    Community Champion Badge

    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Hopefully the topical stuff clears it up! 

    A clear scan means no abcess which was the source of my discharge so that is good.