Hi,
I have had my stoma for a few years now.
The likelihood is I will always have it and will always have yearly tests forever.
Being a gene issues I have family with issues relating to the same gene problem but none with my issues.
I am normally strong and deal with things stoically but presently due to life things occurring as well I am struggling and it's harder to pick myself up.
If it was just that my bag leaks and my body is not my own any more that would be one thing but there is so much more and finding my way has now been tricky.
Hi Fae blossom and welcome to the group.
I’m sorry to read you are struggling right now..would you like to share what is causing you to struggle to see if anyone can help at all? What kind of stoma do you have?
I have an end colostomy and a urostomy, so am also living with these permanently and it’s not always easy. I’ve have both of mine for more than 3 years, so I’m used to them, but that doesn’t mean things always go well.
I hope we can help you in the group, and maybe offer some advice from our own experiences, and support if we can.
Sarah xx
I have had two stomas for a couple of years. The ileostomy pouch used to leak in the early days but, with the help of the stoma nurses, that problem was overcome almost overnight. As well as using a drainable pouch I clean the surrounding area with cold water, then an adhesive remover wipe, then apply a Fusion stick to the skin, press the pouch in place (making sure that the hard plastic ring is in full contact + the margins), then apply Brava elastic strips to cover the pouch flange. Works a treat and I've never had a problem since. I always avoid soap and moisturisers to the surrounding areas as these are likely to negate the effect of the adhesive. Confidence restored after a few weeks' apprehension about going out!
Best
Dulac
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007