Stoma support

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Hi I had an op in May but it went wrong & after a week I was back in hospital as an emergency. I woke up after the second op with a six inch (stapled up) gash in my tummy & having to have a bag attached. That was at the end of June after a month in hospital.

I am generally not in pain although it can be very uncomfortable verging on painful at times, especially when on the move

Sleep is my biggest problem but i daren't take  sleeping tablets or I might regain consciousness to find an unpleasant accident . This has happened twice, fortunately not damaging the mattress.

I now sleep with the stoma bag, old sheets round that, an old T shirt and pajama on top of that. I average 3 visits to the toilet per night but still manage to get about 5 hours sleep a night. I count my blessings, but if anyone can suggest any way to improve on this I would welcome suggestions!!

  • hi spondulix, any stoma product with manuka honey added is very kind and soothing to the skin.. Your Stoma supply company can help you here.

    Before I knew about the above I applied plain yoghurt to the sore area around the stoma  - a bit messy but it did sooth the skin. Eating it helps any adesion/intestine flareups as well.

    Kath
    "don't think about tomorrow"

  • I don't like yoghurt vbut I'll try the manuka honey one. Have heard it's great, but pricey.    Off to Waitrose asap!

  • hi Spondulix, you could just smear the yog. on your sore skin - no need to eat it. Also my Stoma bag hydra frames come with manuka honey in them. These I get free from my Stoma suppliers. Yes manuka is very expensive to buy - I hate honey.

    Kath
    "don't think about tomorrow"

  • do you have a cut off point re: fluids. When it was a problem  for me I'd stop drinking fluids quite early in the evening.

    Kath
    "don't think about tomorrow"

  • Thanks for thid.  Sounds good to me. I have some N.Z. friends so am aware of this honey which I think mainly comes from N.Z!  Honey and yoghurt sounds worth a try. thanks again.

  • you can eat it or wear it! (manuka honey and yoghurt) or both.

    Kath
    "don't think about tomorrow"

  • FormerMember
    FormerMember

    Hi Spondulix I’m sorry to hear about your problems. The one part of your experience I can really relate to is leaks. They made me so miserable and happened at work, resulting in me having to run off, strip in the loos etc! My hospital - and hopefully yours too - is an Aladdin’s cave of every brand and type of bag, spray and accessory. My amazing nurse bundled me off with loads of new things to try after I came to see her at my wit’s end. I quit the Dansac immediately and am on fantastic OakMed now. Never another leak! Salts aloe rings great for sore or irritated skin. Very best of luck :)

  • What is OakMed? salts aloe?  ZZZ now  so apologies for no quick reply.