Support knickers to prevent hernia

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Hi,  I will be having an APR on 16th August to deal with a very early but awkwardly placed (right on sphincter!) rectal tumour.  This will give me a permanent stoma and a Barbie Butt.  I am anxious to avoid getting a hernia and wonder if anyone has any recommendations for high rise support knickers (as advised by the stoma nurse) that I can wear from the operation onwards.

Also, any other recommendations/hints/tips re dealing with the operation (I gather I will have a large open wound at the bottom end) and healing, and also dealing with the stoma afterwards.

Sorry for asking for so much at once but I am feeling rather overwhelmed and not a little frightened at the moment!

Many thanks in advance.

Jane

  • Hello OldRhodie, I can't hep you with knickers but I did have a support belt with a hernia around my ileostomy. I talked to the staff at SupportX who were very helpful and knowledgeable. They have a web site that you can look for different products as well. There are lots of other suppliers but this is the one I dealt with and that my Stoma nurse recommended.

    Regarding dealing with the operation you may get a better response if you repost the question on the Bowel (Colo and Rectum) forum.

    I wish you all the best for the procedure and hope it goes well for you.

    John

  • Hello Crankshaft,

    Thank you for your very swift response.  I will contact SupportX and ask them what they recommend.  Was your support belt very expensive?

    I will ask the Bowel forum about the operation.  There just doesn't seem much information out there about this aspect of the operation.  It is suddenly becoming a reality to me and I start self isolating on Friday.

    Jane

  • Hi Jane,

    You should be entitled to support wear on the NHS, I had the first one that way and then bought a lighter one as it was quicker at, I think about £90. Ididn't look too closely at the knickers but I think they were a lot less expensive.

    If you don't find the information you want on the Bowel forum you could try the Bowel Cancer UK forum.

    Best of luck, hope it all goes ok.

    John

  • Hi John,

    Many thanks for your reply.  Do you have any idea how I go about getting this on the NHS?  Also did you find that your support wear prevented a hernia?

    Kind regards

    Jane

  • Anonymous
    Anonymous in reply to OldRhodie

    Hi Jane,

    If you need one your Stoma Nurse should be able to add it to your prescription. I already had the signs of a hernia so the nurse had SupportX come and measure me. It took at a little time to get it which is why I bought the second one. By the time I got it the hernia had grown, caused mainly by coughing.  Not sure about whether they would supply one  to prevent a hernia on the NHS though.

    I have to say that they aren't the best things to wear, I was never in to corsets! I had an ileostomy and found that if my output was thick the pressure of the belt stopped the output going down in the bag so I only ever wore it if I knew I was going to do something that might strain that area. The support knickers sound a better idea. I would have another chat with your Stoma Nurse again and certainly ask if a hernia is inevitable.  I presume you will have a colostomy and I don't know if the siting of that compared to an ileostomy makes any difference.

    All the best,

    John

  • Hi.I had a panproctocolectomy.and hence a barbie butt in 2019.my nurse suggested that as well as a mattress protector,I popped into a petshop and bought puppy training pads to sleep on.sounds weird but gave me confidence whilst healing.

    The stoma has been no problem so cant really give advice there except just get on with it and take it as it comes.

    All the best with the op.

    Kath

  • Ps.I wear sloggi big knickers.not official support pants but support the iliostomy bag nicely.also more comfy on the aforesaid barbiebum

    Kath

  • All the best for tomorrow.as I said my op was a bit different but I am sure you will get through it.stomas arnt all that bad in the grand scheme of things.

    Kath

  • On a different note,dont forget to take loads of reading matter with you.hospital days always seem looooong

    All the best

    Kath

  • Feeling overwhelmed - I know how this made me feel and it's horrible. I didn't feel in control. Saying this, I just knew I had to deal with it - no choice. I think I was just so grateful the cancer hadn't  spread. I also felt as time passed more and more confident and in control. Not a quick fix but just dealing with stuff one day at a time helped. Not to worry about next week or month just now 

    Kath
    "don't think about tomorrow"