Hi everyone, so 57 year old hubby had tumor removed last year ,keyhole no stoma, but then had anastomic leak so emergency open surgery, followed by perinitius, so 2 days in ITU, 6 weeks in hosp, and came home with a stoma. was told to come back in a year and see about possible reversal. Hated his bag, just couldn't wait to get rid of it.
Saw surgeon this week, removed 2 more polyps during colonoscopy, and whilst in there had a look around, at scarring, stump etc to see if reversal viable.
Apparently, scarring not too bad, and 'just enough' stump left to attempt a reversal. However, apparently once you've had one leak youre at higher risk of having another, and a 'substantial' risk to life. Surgeon is willing to give it a try although in his words it will be 'very difficult', and open surgery again.
Soooo, in my mind, I still have him, he's still able to do most things, he still plays in his Rock band, he's still him, and I honestly don't think the stomas is anywhere near as bad as we was expecting.
However, to hubby, he's always conscious of it, always got his hand on it because it sticks out, he wont get undressed in front of me, has no libido and he just doesn't feel like himself anymore, but he's dreading putting himself thru another op which is a bigger op than the previous 2, and perhaps risking his life.
What to do, what to do...
He wants my advice, he really wants me to make the decision, but I cant.
Anyone else been thru this?
grateful for any comments
ty
Oh there’s hope for me then (?as many as that initially )
my oo was late September and I still get off weeks when Phred my stoma acts up
so thanks I might try more of the magic Immofium
Hi Donna, sorry don’t come on here often, we are good, same as you last op has been postponed so he has been told he is at the back of the q now as they concentrate on the urgent operations x x
Hi, I was 39 when I had my bag, I went into the op being told it was unlikely and came out with one. I have a boyfriend who I don't live with. So naturally I was worried, he's 35, it's bad enough telling your 35 year old boyfriend you have colon cancer let alone you'll have a crap bag hanging off your stomach. But I just had to honestly brave it out. I just thought in the end, I'm still me. So I have a bag. It's inconvenient, and awkward during intimate moments, but I just went for it, I had to, or it would have taken over and ruined my confidence. I know everybody is not like that, but I just wanted him to see it and I never wanted to be ashamed or embarrassed. I can honestly say, if we had been able to go on holiday this year, I probably would have worn a bikini. And if anyone asked I would educate them. With it being summer I notice my bag more and I'm sure you can see it swinging around underneath my dresses. But I have just learned to accept that it is what it is. I'm so sorry your other half hasn't got there, but as I said everyone is different.
Maybe, if he can be brave and let you see it, his confidence will grow, its hard to keep something when you have a hate for it. Maybe accepting it and letting you love him with it, may be what he needs.
He has nothing to hide and nothing to be ashamed of. I'm sure you love him regardless.
My boyfriend couldn't care less about my bag now and neither could I. All his friends and mine know, and work colleagues. I refused to be ashamed. L
Of course I'd rather not have it. But I'd also like bigger boobs and a smaller tummy. But Hay whose perfect. I hope you guys make a choice that makes you both happy together, for a long time to come.
xx
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