Hello,
I have an colostomy and an urostomy, both of which I have had for over eight years. However, over the weekend there has been what looks like blood clots in my poo/colostomy bag. Has this happened to anyone else? And if so, what was the cause?
I have a lot of damage to my pelvis area due to radiotherapy.
I will be contacting my GP in the morning and I am terrified
Lisa
Hello LisaCardiff
I understand that this must be a very frightening thing to happen.
Could you perhaps give NHS111 a call and get some advice?
Jane
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Hi Lisa LisaCardiff
I haven’t had this but with stomas myself I know how scary that would be. You say it looks like blood clots, but hopefully it’s not. I know you eat a very simple diet to avoid blockage but could you have eaten anything at all that made things red? Like beetroot for example? I’ve found my gp surgery not clued up on stomas at all and no help in my own situation so I hope your gp will be better and get you seen at hospital if it is blood. I would agree that 111 probably wouldn’t be able to help but if it’s blood clots that would be something that needs seen to urgently. I hope you get on ok today.
Sarah xx
Hi SarahH21 ,
Thank you for your reply.
I saw my GP this morning and I went over my past, radiation damage, PTSD, etc., She felt my stomach and took at my colostomy and there was a small, what looked liked, a shred of skin in my bag. She told me she believes there isn’t anything to worry about and it could possibly be some damage coming away. She also told me to maybe contact my stoma niurses and she will have a chat to her colleague and phone me back later. She kept telling me not to worry. So it has given me a sense of relief but I still feel like my nerves are shaking.
Thank you for your kindness, it really means a lot,
Lisa
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No problem- I was just a bit concerned because you said it looked a bit like clots but I see you have seen the doctor now who has reassured you
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Hi LisaCardiff
I’m glad you’ve had some reassurance from your gp, and hope it’s just something coming away from inside. It honestly is so scary when you have something unusual with stomas-my poo turned grey in February and my wee turned brown. My gp wouldn’t give me a face to face appointment and just prescribed antibiotics for a urine infection. Two days later I was admitted to hospital by ambulance as it wasn’t a urine infection at all-my bile duct was blocked by a gallstone and things were actually really serious.
So, I understand how worrying it is to see something different in the bag! And I’ve lost faith in my gp..if anything like this happens again, im going to go to A&E and bypass the gp because it was life threatening for me that time.
Sarah xx
Hi SarahH21 ,
Thank you for you reply.
Boy, oh boy, you certainly went through an rough time in February and I hope you are feeling better now.
I feel okay and I am still on edge. I suppose having PTSD doesn't help either. My GP was sympathetic this morning and I explained everything from been diagnosed, the operations, PTSD, radiation damage, a prolapsed pelvis, losing my mum just over a year ago, a full emotional and nervous breakdown panic attacks in October and now this. She told me I have has a lot of stress and she said she doesn't feel or think there is anything to worry about, as my stomach is soft and I am generally good. Which is lovely but I still panic. She did say she would speak to a colleague and phone me later and for me to contact my stoma nurses, which I will do when I build up the courage.
I read on your profile that you run a support group for women like us and I know is this very forward of me, but I would like join, please? If that is okay. It sounds like something I could do with but also try and offer some kindness too. Pleas let me know.
Enjoy your day and thank you,
Lisa
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Hi Lisa
Yes, I run a support group which is specifically ladies only, for those who have either had or who are facing some kind of pelvic exenteration.
I will send you a private message later with my email address as I can’t give out information in this group, but absolutely you would be welcome to join us.
Sarah xx
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