Phantom rectum feelings

Hi Big cally 75 

So sorry to hear that . That’s a lot to go through . We have a stoma group and I will ask admin to pop this onto that group too as they may have more insight into this aspect . 
Our helpline staff might be able to link you into other organisations too . https://www.coloplast.co.uk/Stoma/people-with-a-stoma/living-with-a-stoma/

 Ileostomy, colostomy and stoma support

If you go to the stoma link and use the search function ( magnifying glass in the top right hand corner ) you can type in “phantom pains “and see the experience of others who have also been through it .

Our helpline staff might also be able to guide you to other resources on 0808 808 0000

Take care ,

Court 

Hi there Big cally

Yes I had it and I found it very disturbing as most of the time it woke me up bringing back those feelings I had when I had the rectal tumour causing pressure

I passed a little mucus but nothing really significant  it did improve in time 

Take care 

I have this frequently. I have had my ileostomy for a year now. It is often accompanied by a discharge of mucus. My consultant says this is normal, as although the rectum has been removed,  there is still what is called a rectal stump which allows this to happen. Can I ask about your hernia, as I am now having some pain around my stoma area. I wonder what you have experienced regarding this. All the best 

Hi Steph, I wouldnt wish a hernia the size of mine on anyone, if you can imagine carrying a bowling ball around glued to your stomach exactly underneath your stoma site that's what it's like in size comparison. I'm sorry I sound so negative about it but it is what it is. I get a considerable amount of burning like pain it can be quite severe most of the time but I'm on strong pain meds to keep that feeling at bay, it makes everyday life a nightmare especially with an ileostomy bag as mine always crinkle around the edges even at the point of application so I'm prone to leaks and the escaping of horrendous smells which is really embarrassing especially sitting in a crowd. There is no quick fix of a hernia especially as it protrudes pushing through my stoma sight, I've been told I'm in a catch 22 position where in order for me to get the hernia sorted I would need a complete resection at the same time, I personally feel that having a hernia so big has really dented my confidence as I cannot hide it even with really baggy clothes, it's also a complete nightmare if you have to really cough or sneeze as you feel as though it going push more out. I'm really Sorry to have depressed you Steph but that's my daily experience.

BIG CALLY 75.

I'm so sorry to hear this. I do hope you can get it sorted. Keep strong.