Reversal how long should I wait?

Hi Ann,

You are having a rotten time, I'm so sorry! I honestly thought you'd be so much better now and that your team would be able to help much more! I'm actually glad I was told there was no chance of a reversal for me, I'd never be as brave as you're being! Thank goodness you're getting advice and support on here!

I go for my Ultrasound today and, I'm such  wimp, I'm dreading it or rather the results! I've been told, by a nurse on my team, that what will be, will be and to just get on with it! While I know she's right, I feel like asking her if she's ever tried living through it! Then I come on here and you and Karen are still laughing, painful though it is! I'll say again, what I've said countless times, thank God for this site! 

Take care Ann,

Moira x 

Hi Artsie,

Just caught up on your news, and sorry to hear you are having such a rough time. I quite agree with others you shouldn't have been let out like that. I found with my husband the only way to get help was to actually ring the colorectal assessment unit at the hospital. They were the only ones who listened to me. All the stoma nurses said' take a laxative', which we found out later wouldn't have helped anyway! And its pointless trying to talk with a GP.

Hope you are feeling better, soon xxxx

Hi Moira. 
I’ve just picked you up. Another terrible night slept on the sofa from 1.15 and at 3.20 Whoopi opened a can of Whoop-ass. Three times She may have been cut of but she’s there alright. 
im so spaced out it’s untrue 

Fell asleep on sofa after nice shower etc phone rang and it was my consultant. I could barely string sentences together. Anyway he’s adorable and so supportive. He said he would see me today if needed. Was really aghast I was out next day! Told me who to phone so all in all I feel better. 
I wondered how you were getting on with your checks. Good luck with the scan. Please let us know how you get on 

Have you been to London? 

I feel the same as you all of us here do we get it. Cancers a Ghoul that haunts and we just have to keep pulling up our big pants and hope for the best. Those big pants fall down and we get on here and others pull them up.
Ha ha that’s made me smile now. 

Have good day. Xx

Hi NannyAnny 

Thank you for your support. I really appreciate it with all that you’ve been through you fully understand the way sometimes through misunderstandings the patient is actually worse off. 
when I am stronger and I see my consultant I will hand deliver a letter which will explain how although his operation was a success the after care was dreadful. The ward I was on didn’t even know where my operation was, the nurse thought my dressing was on my back. That was the same nurse that asked to have one of my tablets for another patient. 
I feel that now I have spoken to him and he’s explained everything I will become mentally more strong.
It has hit me for six. A lot of that is I had years of the toilet controlling me, the bag gave me freedom now I am a toilet hugger again. And it’s a cold place to be isn’t ?

Maybe I should invent a heated toilet seat. That may be a money spinner though no one could afford to have the thing turned on. 
How are you?
Take care

Hi Ann,

I'm sorry you're still having bad nights and naughty Whoopi is reminding you she's still there! Your consultant sounds wonderful, why the heck aren't the rest of them so nice and helpful? You've really had rotten luck but maybe, with the consultant checking up on you, it might shake the rest of the team up!

We haven't been to London yet and it's looking doubtful that we're going to get there! The trains are on strike the day we're due to travel! My son's have opted to get a coach down but my husband won't hear of me doing that! Although I've argued that I'd be fine, 8 hours on a coach might be a bit much! So, if there a train, that day or even the next day, I'm going, otherwise I'll be sitting beside the phone incase GP phones with the result of my scan!

You've made me laugh with your talk of our big girl pants, my elastic is loose today! Can't laugh to much, I have to have a full bladder for the scan!

Take care Ann,

Moira x

Best wishes for your ultrasound.Love Jane x

Hi Artsie.Sorry to hear things are still rough.Your consultant sounds lovely and I’m glad you have a number to phone.Bigs hugs.Love Jane x

Morning ladies. Well I put my pants on this morning to find that they had a hole in each side ( no not the leg holes) so Ive obviously been pulling mine up too hard! I’m so glad your consultant has been in touch Ann - sometimes a few reassuring words with the right person can make all the difference. 
At the risk of getting something thrown at me - I need to ‘go’ and it’s not happening! I’m going for my other hip replacing in a few weeks and because I’ve stayed overnight in a hospital outside the lincolnshire area (despite it being lincolnshire nhs that sent me there!) I  have to be checked for gut bacteria by providing a stool sample on alternate days for 5 days. I explained that I’ve had bowel cancer and can’t poo to order but 3 test tubes arrived in the post all the same. Tuesday went ok but today……last night was a different story so maybe I should have lied and used that for today …….damn my honesty. Let’s see what effect the smoked haddock has for tea!

Sorry - I’ve gone off on a bit of a me, me, me tangent there. Hope you manage to catch up on some sleep Ann and your scan goes ok Moira

Take care

Karen x

Hi Artsie, 

I'm OK. Been very busy doing lots of clearing out. I've been longing to attack the garage for years. It was full of things that might come in handy, but never did!!! The biggest head ache has been tracking down where he had put money. No lists or indication anywhere! That, and the fact that he did internet banking, which I never did. Again, no idea of passwords or anything else!! We had a fruitless trip to a bank in Southampton only to discover there was 2p in there!!!! At least it gave us a laugh.

I can't fault our hospital in Portsmouth. My only complaint was that when I needed an ambulance as he kept being sick, it took 6 hours to come!! I had given up, and my friend drove us down there after 2 hours, pushing him in a wheelchair and holding a bucket, up to the assessment unit. Although the ward rang to cancel the ambulance it arrived at the house at midnight, waking me up!! The driver  was very apologetic, and said it was worse than in winter, and that was June time!!   xxx

Artsie Glad to hear you have spoken to your surgeon.hopefully things will now improve.love your heated toilet seat idea.nice to see you still have your great sense of humour despite everything that is happening.you always manage to cheer everyone else up so I hope we can all do the same for you

Kath