Immodium

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I have been reading that a lot of people take immodium to slow down output. Is this necessary for most people with an ileostomy?

The last two times I took immodium for a stomach bug, I had severe chest pain for several hours. The same thing happens if I take codeine.

  • I had my pre op yesterday and should be having my op in the next few weeks. I've told them I can't take either and nothing was said. Just praying morphine doesn't have the same effect. 
  • Gosh all the best with your op.all I can say is I have had an iliostomy now for 2 1/2 yrs and have never needed to take immodium.

    I am sure that your surgeon etc will take good care of you.

    Kath

  • Hi Debbie62

    I wanted to say hello and wish you well with your op. I’m six months since my LAR and like Katz51 I don’t take anything and eat most things now. 
    Keep us updated.
    I found this group so helpful and supportive

    Ann
     ‍Art

  • Just a thought.did they actually say you would need morphine after your op.I didnt have any.just paracetamol for a couple of days

    Kath

    • No they didn't say I would need morphine. So hopefully paracetamol will be enough. They just said there is lots of choices for pain relief. 

    Debbie

  • Hi

    It depends on what operation you are having. Although the op may have same outcome some patients need incision and keyhole some just keyhole some just robotic. Really don’t worry about that whatever you have just to have that cancer in the bin you won’t be worrying about pain. They will sort it. You can say you don’t want morphine there’s choices each is an individual. 
    Hope you hear soon

    take care 

    Ann
     ‍Art

  • They did say at Pre op I was down for robotic surgery and that is less intrusive and a bit less recovery. They did say to do at least 30mins of high intensity exercise every day before my op. 

    Debbie

  • That’s really good news

    If you click on my name and read my bio. Mine was six hours. A friend of the family had robotic her recovery was so fast. Mine not so much. But I’m absolutely fine and so relieved to have that tumour out. 
    Exercise is so beneficial and eating well. 

    Ann
     ‍Art

  • Hi Debbie62,

    I was prescribed Immodium post surgery for a high output stoma and I was taking a lot of them as well as Omeprazole.

    However, I began to think after several months that they weren't making any perceptible difference, I decided to stop taking it for a week before I had a review with my surgical team and discuss it with them. There really was not difference when I stopped taking it and the surgical team member agreed that I should leave off taking them and then try stopping the Omeprazole after a couple more weeks.

    I then had an appointment with a gastroenterologist because of the high output issues. He told me that Immodium doesn't work with ileostomies, especially if they are higher up. It works well with colostomies, apparently. The Omeprazole is also unlikely to help.

    When I took it I never had any chest pain or other side effects that I noticed but this was all post-op.

    I had morphine post op and stopped this at the earliest opportunity as it messed with my head too much!

    Hope this helps and best of luck with the surgery

    Osboz