Putting ileostomy back in - advice

Hi Paula, its absolutely the right thing for her. She has had the ileostomy before and knows what to expect, this is an informed decision. I have to be honest, i got on ok with my ileostomy, reading peoples stories post reversal filled me with horror to the point i nearly didnt have my reversal, as that seemed far worse than the ileostomy. My mum (i am also younger) said, if worse come to worse and i have the reversal and things sre too hard and it rules me, i can always have the ileostomy back. I did it, and i have been so unbelievably lucky. But i would absolutely have made the decision your daughter is making if that hadnt been the case. I wish her luck and im sending her love.hope that settles your mind a little. 

Laura x

Hi Laura ,

thank you for the reply . She’s tried everything else at this stage , even was doing irrigation for a while but nothing helped .

I know it’s a big step and might even be seen as a backwards step but if she thinks it will make her life easier then I’m all for it .

I suppose my worry is that she got on ok with the stoma the first time so I’m worried it might not be the same this time ? Is that possible ? I really want her to put all this behind her and get on with her life even if it’s with a stoma  at the moment her bowels rule her life 

Hi Sammolly.

Sorry to hear about your daughter's problems. I have a permanent colostomy which I knew was going to be permanent before I had my operation. At the time I was really upset that I would not be able to reverse it. Now though  having heard about so many people who have had it done and had problems with it, I'm  happy that I didn't have to make the decision. If I was told now that by some miracle, it could be reversed, I would keep my stoma. As she was good with it, the right thing to do is definitely to have it back. I think it's a no brainer!!

Good luck to you and your daughter.

Love Kim xx 

Hi Kim, 

I think it’s the only option for her really . I was just wondering go if anyone else had similar experiences and has decided to put it back ? Hopefully it’s the right decision ,

thanks the reply 

Paula 

HI Sammolly i know exactly what your daughter is going through and have been through hell , i have been on here before saying what i do which has helped me a lot , my bum was very sore and bleeding from going over 20 times a day , i did think why didnt i keep the bag at times , try this if you havent already , 2 x fybogel one after breakfast and one after dinner , chia seeds on your porridge or wheetabix , 2 x loperamide 20 minutes before your main meal , what you are doing here is bulking up your stools so when you go its more of a movement with the fybogel and slowing down the transaction with the loperamide , give it a week to kick in as the fybogel can give you diarohea at first 

good luck 

darren