Imminent APR surgery

FormerMember
FormerMember
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Hi,  I’m new to this group...

I was diagnosed with stage 3 anal cancer in January of last year and went through the usual chemoradiotherapy treatment. 
at my routine checkup in December my oncologist wanted to check something out as he wasn’t happy with what he saw... to cut a long story short, MRI CT and PET scans led to a further EUA (examination under anaesthetic) and the results received the day before yesterday have shown active cancer.  I am now provisionally booked for APR surgery in two weeks time (Corona Virus permitting...)

I am due to see the stoma nurse tomorrow and and wondering what I should ask..... any help please?

it all feels surreal and I think my brain is struggling to cope with the reality of my situation, especially in these extraordinary times. 
I am also interested to hear about tales of recovery...  how long did it take? How much help did you need?   My husband is a farmer in the  midst of his busiest time of year (lambing) so will only be a limited amount of help, I am obviously self isolating and live in a rural community. I would usually rely on my daughter and friends for assistance but that’s not an option in the current climate 
I really just don’t know how to prepare myself for this so please, any help or advice very welcome. 
thank you x

  • Hi Cows and sheep 

    Sorry you have had this news. I had rectal cancer diagnosed last May. I had 5 weeks Chemo tablets alongside radiotherapy. Three months wait to see if the tumour had shrunk, which it had by 1/3rd. Lower anterior resection early November. I was out if hospital in 5 days. I was reasonably fit beforehand, so don’t know if the rest was down to luck, but able to get my own lunch and make cups of tea the next day! Managed short dog walks with my husband 5 days after hospital discharge. I had an ileostomy for just under 4 months. I gave my stoma a name which I used to talk to! I’d scold her if she was playing up and praise her when she wasn’t. The nurses make sure you can cope before you are discharged, and are at the end of the phone after that. You can go and see them if you have a problem, which I did. Had 3 leaks in 6 days! Turned out I needed a different type of bag which the stoma nurse sorted out. The weirdest thing I found was the fact that the stoma doesn’t hurt. I found that the nurses answered more questions than I could think of! There are leaflets to help too. My advice would be to ask as many daft questions as you can think of. They won’t seem daft to a stoma nurse. Good luck with your surgery and recovery. I’ll keep an eye out for any updates you post. Sorry about the long post.