Hi
6 weeks ago i had my colon operation, removal of cancer tumor. My hospital stay had a lot of complications, spleen busted, infectious boil, pain remedies didnt work and 3 weeks where there was not any passage in my colon to my ilestomy. I didnt eat for the first 3 weeks(tube fed)
I am slowly recovering, yet i have nearly constant nausea, it seems to be connected to eating/passage.
Im very careful of my food intake, lately i now also follow the Fodmap diet.
Are there some patterns regarding nausea.
Any experiences?
Thank you
Elisabeth
Hi Elisabeth
You've been through a lot. I'm not sure if you've had a colostomy or ileostomy? I had ileostomy in February. I suffered a lot of nausea and regularly take Cyclizine which has been a great help. I've just started Carboplatin chemo and find I have to take additional meds to control the nausea, I have domperidone to help.
You must discuss with your stoma nurse or consultant to help you take control of this and live your life to the full.
I found the fodmap diet too complicated when I suffered from IBS, so eat pretty much what I want and note any side effects in my food diary.
All the best Dawn
Hi , I'm sorry I missed your original post and was only picked up by drawing my attention to it.
How are you feeling now has the nausea eased off, nausea is one of the complications associated with Ileostomy surgery and as you have found out the operation can stop your bowel being active and if lasts for some time can be down to a blockage which should be investigated.
Normally to alleviate cramping or nausea it is suggested that the following might help
If you think you may have an obstruction, contact your GP or stoma nurse for advice.
They may recommend:
In persistent or severe cases, you may be advised to go to your nearest accident and emergency (A&E) department as there's a risk your bowel could burst (rupture) but as you aware in Denmark you have to phone them first otherwise they may not see you.
Hopefully you may not need this advice and the nausea has subsided and you are feeling better.
To avoid me missing any future post you may make in either the Bowel (colon and rectal) cancer forum or Ileostomy, colostomy and stoma support groups can I ask that you do the following
Type @bodach
This will up a blue highlighted box with my name which you click on
This blue box will change to when your message is posted and I will be alerted by email, or you could send me a private message by befriending me.
I do hope that all is okay with you now but please do keep in touch and keep us informed how you are getting on, it is always nice to hear from our overseas friends.
Again please accept my apologies for not answering sooner.
Best wishes
Ian
Hi
For some reason i'm denied access to start a new discussion, therefore i am asking through this old topic.
My dietist recommended a gall bladder flush with epsom salt. The salt, magnesium makes the water be pulled into the intestines and the bowels empty, I used to do this for constipation, this time with my ileostomy i'm doing to soften my gallbladder and its stones, to flush them out.
Has anybody tried this.
Regards, Elisabeth
Hi Elisabeth
Nice to hear from you again.
I'm sorry that you're experiencing some problems with the site and starting a new discussion, I had a quick check and you are still on the members list, what are you getting on your screen when you try start a new discussion from here
It maybe just a glitch in the system and I would suggest that you log out of the site and log in again to see if that helps.
Are you seeing the above when you go into the Ileostomy, colostomy and stoma support group home page
Joined with a tick mark in a green circle
LEAVE with a x in black circle
+Start a discussion
You should be able to start a new discussion when you click on the text
Would it be possible for you to try and start a new discussions headed TEST and see if you can access the new page, if you are still having problems come back to me in this thread and let me know and I'll raise it with Admin on Monday morning to see if they can come up with the solution, they can do things that I am unable to do like access your settings, please let me know
YOUR QUESTION
GALL BLADDER FLUSH or as also know LIVER FLUSH
I think I would be concerned personally about this as I also have an ileostomy due possibly having high risk of increased watery output.
I see that it has been suggested by your Dietist/dietitian, have you spoken with your GP, Surgeon or the stoma care nurse to find out if there is an alternative like following the Eat well Guide
Sorry, I've not been of much help perhaps one of the other members will come on and tell you if they've had one
As always you are welcome to ask the opinion of our specialist nurses by clicking on the Ask a Nurse page and asking the same question.
Hope someone will give you an answer soon, in the meantime please send me a test message see below
Ian
Hi Ian
I just tried again and was denied to submit. Please talk to the administration. Thank you.
Regards Elisabeth
Hi Ian
Do you have time to talk with the moderators regarding why i cant start a discussion.
Regards Elisabeth
Hi Elisabeth
I'm sorry that you're still having access problems.
I will raise it again with them to have a look at your settings.
It might be helpful if you could send an email to
community@macmillan.org.uk
explaining the problem but I will send them a message also and you will see that I've tagged admin into this conversation.
In the meantime was there something you wanted to start a discussion on that maybe I could help you with on this thread hopefully we will get you up and running very soon
Regards
Ian
I would be obliged if you could have a look through this thread as is being refused access in starting a new discussion.
Many thanks
Ian
Thank you Ian
I just sent a message to them.
Sometimes with a stoma you have to go with your own intuition, because my stoma nurse does not of anybody doing a colon cleanse whilst having a stoma and nor do I for very good reasons. If I flush my colon with a loop ilestomy could I put too much pressure on my intestines and thereby poop through my rectum, which in fact I have tried before. One day, I had alot come out of me, I was very surprised and needless to say, a mess.
If nobody can answer I will sleep one more night on it and decide.
Thank you
Hi Elisabeth
Colonic irrigation or colon cleanse I afraid is a subject that I don't know much about.
As I understand it if an non ostomate is having the procedure they would have a thin tube inserted into their rectum and about 60 liters of water or other cleansing fluid forced through until the colon is full then the evacuation of the fluid removes everything in the colon including toxins.
With any type of stoma I would think that the fluid would have to be forced in via the stoma and the evacuation coming out the via the stoma into your bag which I think would be problematic.
It is not unusual to have occasional poop coming out of your rectum after a stoma as this is just the body pushing out any waste that has been left in the part of colon leading to your rectum and you may feel the urge to pass waste from your rectum which can either be mucus or poop.
People with colostomies are able to irrigate to regulate their output, they normally do this every other day and don't have to wear a normal bag as they don't have regular output.
When colostomates irrigate they only pump in a small amount of warm water then wait for it to come out with waste
It is not advised that anything is inserted into an ileostomy.
The exception might be if a blockage was experienced a doctor may try to unblock by inserting a thin rod through the stoma also if ostomates have to have a colonoscopy this is done through the stoma and would be carried out by a specialist doctor.
With colonic irrigation via the rectum there is a possibility that the bowel/colon could be perforated and start to bleed which becomes a medical emergency.
Elisabeth that's my understanding of the procedure, in the UK the advice given to people WITHOUT a stoma is that they should discuss it with their GP for guidance.
I am surprised that your stoma care nurse cannot advise on the procedure and I wonder if you were to try and ask our nurses in the Ask a Nurse group page if they could could give you some advice on it.
Please do try and raise a question to the nurses if you can.
I'm sorry that my knowledge of the procedure is weak but I hope that by giving you the above will have been of help to you.
Regards
Ian
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