Hi every one here
Im lousia and 17 had pelvic exenteration and kidney removal. 3days ago
I have permanent ilostomy and colostomy
Just wanted to introduce my self
Good to be here
Welcome Lousia to out little bit of madness called poo corner and I just wish it wasn't necessary for you to be here but fate has dealt you a cruel hand at such a young age.
I've been following you, not stalking, for the last week or so and I am pleased to see that the first round is over and hope the remainder of your surgery goes equally as smooth.
If you can remember the name and Ian you can call on me at anytime you need to know anything to do with your stomas, won't go into anything specific at the moment but please if you need help give me shout out whether it be with your management. Pouches or supplies I'm here to be of help at anytime. We work on the principle here that there is no such thing as a daft question only the one you don't ask, if you're thinking it ask it and one of us will give you an answer.
My first piece of advice to you is own your stomas, don't let them own you. The only thing that may hold you back from enjoying the things you used to do is your other conditions.
Only yesterday I was reading a piece about a young lady with a stoma who trains and competes in martial arts and thinks nothing of getting her bag out. Not suggesting you take up extreme sports but there will still be a lot of the activities that you used to do that you can do and many of the members will tell you what they still can do.
Take life easy for the next few weeks/months and remember if you need to cough or sneeze your first priority is to hold you stomach in by crossing your arms over it you don't want a hernia do you, follow the advice from your new best friend, the stoma nurse and ask us anything you need to know urgently.
I am sure that your mum will want to be involved with helping to change your stoma pouches shoo her away and try as much as possible to do everything for yourself.
I can't disappoint the other members of the group so I must tell you this when you're having your meals you must chew, chew, chew, chew, chew, chew, chew, chew, chew every mouthfull and when you think you can't chew, chew, chew anymore have a few more chew, chew, chews before you swallow it really does make sense.
Keep in touch with me ask me anything at anytime.
I'm the Bodach your community champion for the Ileostomy, colostomy and stoma support group.
Ian
Thanks ian for your advise it helps me really much
Thanks for everything you said as it really gave me hope
I have pain around it and it really gave me the power to fight for things i like to do
And thanks for giving me the opportunity to ask
Hi Lousia
Thought this LINK might interest you.
Not suggesting you try it just wanted to let you what can be achieved if you remain positive in your outlook to life.
Hope you're doing well today.
Are you still in hospital or back home and being pampered and spoilt by your mum!
Keep in touch
Ian
By clicking on the green text above will open up a new page for you.
NOTE ONCE THE LINK OPENS YOU NEED TO CLICK ON THE TEXT UNDER THE PICTURE TO OPEN UP THE ARTICLE
Hi how are doing today
Im ok now and still in hospital i wont leave here before next 2 months
We are talking about my next surgery with my doctor as they will remove lots of organs in that op
Will read this article it gives hope it seems
thanks for your advise
Nice day....
Hi ,
Welcome to the group where we talk about poo as if it's the weather. I had a quick look at your profile, and you are a warrior! There will be tough times ahead, but ... YOU GOT THIS!
All the best for the upcoming surgeries, and let us know how you get on.
Lots of hugs
Yolande
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