I have had my stoma since January 2017. It has remained the same size since February. In the last few weeks I have had to readjust the size of my pouch several times - trial and error.
Nothing has changed regarding diet, life style, medication etc. It also pancakes quite a lot - tried all of the remedies I know - oil in pouch, blowing air into pouch (fresh ones only), screwed up loo roll.
I have an appointment with my stoma nurse in a couple of weeks.
How often does your stoma change?
I would like to get sorted before my new chemo starts next week. Who knows what surprises are in store for me and my stoma mate then.
Please share your secrets - you know you want to.
P.S. I tried to have my pouch pre cut by my supplier- they had the template round the wrong way. Thought chemo brain had taken over. DIY is best xx
Lots of love xxxx
Hi All
After 4 years I have got used to my shape shifting stoma.
When changing bag it can be various sizes from looking huge and swollen, to tiny and flat.
I just wait a few moments until it resumes usual size (actual hole cut in bag same since 2 weeks after surgery)
Is there a way to get a copy to be able to print out the full size of the Bristol Ileostomy Output Chart?
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007