Change of stoma size

FormerMember
FormerMember
  • 32 replies
  • 34 subscribers
  • 82014 views

I have had my stoma since January 2017. It has remained the same size since February. In the last few weeks I have had to readjust the size of my pouch several times - trial and error.

Nothing has changed regarding diet, life style, medication etc. It also pancakes quite a lot - tried all of the remedies I know - oil in pouch, blowing air into pouch (fresh ones only), screwed up loo roll.

I have an appointment with my stoma nurse in a couple of weeks.

How often does your stoma change?

I would like to get sorted before my new chemo starts next week. Who knows what surprises are in store for me and my stoma mate then.

Please share your secrets - you know you want to.


P.S. I tried to have my pouch pre cut by my supplier- they had the template round the wrong way. Thought chemo brain had taken over. DIY is best xx


Lots of love xxxx


  • FormerMember
    FormerMember in reply to Panda21

    Hi All

    After 4 years I have got used to my shape shifting stoma.

    When changing bag it can be various sizes from looking huge and swollen, to tiny and flat.

    I just wait a few moments until it resumes usual size (actual hole cut in bag same since 2 weeks after surgery)


  • FormerMember
    FormerMember in reply to FormerMember

    Is there a way to get a copy to be able to print out the full size of the Bristol Ileostomy Output Chart?