I have had my stoma since January 2017. It has remained the same size since February. In the last few weeks I have had to readjust the size of my pouch several times - trial and error.
Nothing has changed regarding diet, life style, medication etc. It also pancakes quite a lot - tried all of the remedies I know - oil in pouch, blowing air into pouch (fresh ones only), screwed up loo roll.
I have an appointment with my stoma nurse in a couple of weeks.
How often does your stoma change?
I would like to get sorted before my new chemo starts next week. Who knows what surprises are in store for me and my stoma mate then.
Please share your secrets - you know you want to.
P.S. I tried to have my pouch pre cut by my supplier- they had the template round the wrong way. Thought chemo brain had taken over. DIY is best xx
Lots of love xxxx
hi my bags are precut by Charter as well I use the convex ones, never had any leaks, could not cut them myself so works for me. I use the lubricant as well but does pancake but as don't eat much think that's the problem do try and drink as much as I can though
5 days later and a different size each day, normal(ish) service has resumed. Really didn't like the look of the flat prune like stoma. Much prefer the smooth raspberry style.
The noise level was quite funny. The whizz popper song from BFG came to mind.
'Whizz pop whizz bang feel the bubbles go down
Whizz pop whizz bang bursting al around.'
Still no leak.
Have a good week all xxxxx
I am pleased your stoma has resumed normal service and is making sure you know it's there by making itself heard!
I have had my stoma since end of June and hopefully it will only be temporary however this is a whole new world! I have been kept busy trying to get the output of my stoma regulated. An interesting time! Now it's too thick so have to try to reduce medication to strike the right balance! I was dehydrated before so going to take it slowly! Â
I love this forum or poo corner as it is also known which allows questions to be asked openly and advice given.
I hope you're keeping well as can be expected and I am also in the north east and can confirm not warm! Sitting with a blanket on and had the heating on this morning!
Keep strong xx
Panda
Do keep well hydrated - that's the single most important thing I would recommend. In hospital they measured me 2 litres of water a day, but encouraged me to drink more if I felt like it. I still do that, although I have gradually upped the proportion of the two litres taken up by gin and tonic - add a slice of lemon and I've only got to find another 4 and that's my 5 a day! It's a great life if you don't weaken, as they say !
Hi MarocÂ
Thanks for the advice I had to limit my fluid intake in hospital because stoma was being over active which ended up with me being dehydrated, fainting and splitting my head open just 3 days after my bowel surgery! Think they all got a shock I was too poorly to care!
Since output has settled and pain I have stopped taking tramadol so a gin might well be on the menuI didn't know I could have tonic though since they say nothing fizzy? However since stoma' like to make themselves heard I suppose it would only make it louder
My stoma nurse is coming out again  tomorrow since it's 6 weeks since my operation and I am beginning to feel more like myself so hopefully they will be more lenient about me doing things around the house and since I've kicked the tramadol hoping to get back driving too!
As always thanks for the advice and I am definitely drinking more now  about 3-4 pints of water a day which will very son may be increased by a gin and tonic!
Thanks again x
Panda
I don't like the sound of that fall - you had enough to to cope with with the surgery!
I'm not a great one for fizzy drinks in general but I've never had a problem with tonic water, or indeed very much else. The best thing I found is just to try small helpings of what you feel like and see what happens. Within about 3 - 4 months of surgery I was eating pretty much everything I used to and still so far so good.
I hope things continue to go well for you.
Hi Joan, I've had my stoma since Feb.13th this yr. I've noticed its getting smaller. I've been cutting my own from the start. The greatest thing I found was Eaken seals, until I started using them my skin was raw and bloody. They have completely healed the skin around the stoma Thank God! I was really getting worried I was using stoma powder and barrier wipes and having no change for four months. I cut mine really close and use the seal and good to go. Knock on wood! I wish you the best with your buddy.
Please give me the strength to change what I can, accept what I can't change and the wisdom to know the difference.
Love and Respect Tony
Hi Tony
Pleased that you have found an answer to you problem. As we all know none of us are text book cases but it is good to have the support of others.
As my son used to say when he was little
'To share is to care'.
My stoma behaved really well all day at hospital during chemo. When I got home it was 'tubular bells'.
Returned to almost my regular size, with no sore or leak problems. Still cutting to size myself rather than wasting pouches.
Best wishes x
It depends where the original cancer was, I guess.
If it was in the large bowel or rectum, you might not notice if you have an ileostomy.
My symptoms did not arise directly from the tumour but more discomfort from the "build back" of faeces. I eventually had bleeding in my stools although even this abated when I adjusted my diet. So, if you aren't using the bowel, any new tumour may be less noticeable.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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