Have you develeoped Lymphoedema after surgery?

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Hi. I have been diagnosed with lymphoedema (in both legs). This makes mobility restricted and painful. I had surgery to remove tumour in late 2024, and received a stoma. For 6 months I felt I was recovering. For the last year I have felt I was 'going downhill' and getting worse again. I was recently diagnosed with lymphoedmea and I have compression garments plus exercises from physio of local hospital.

I work full time, and contracted to be in the office 2 days per week. At present my employer has agreed I can work from home full time. However I am told that this cannot last forever, and that expectation is that I return to office 2 days per week. If I cannot do that I am told that would be unworkable and would have to find another job.

Has anyone else faced this with an employer and could you suggest where I could get clarity on my rights? I fear that commuting 2 days a week would be too much, along with the set up at work where I would not be able to elevate my legs, have to negotiate Staircases etc.

Thanks, Philip

SarahH21 6 days ago

Hi PJP3bc4a3 (Philip)

I’m sorry to read about the current difficulties you are facing, and the impact that this lymphoedema is having on your life. It sounds extremely debilitating.

I had major surgery, and live with 2 permanent stomas, but have been fortunate not to develop any lymphoedema. I can no longer work, and am retired now so haven’t faced the issues you have.

I’d recommend you call our support line-the number is in my signature- and ask to speak to an advisor who is specialised in work related matters to get accurate advice going forward.

In the meantime, I have put some links here which I hope you might find helpful.

Employment Rights

Work and Cancer

Talking to Your Employer

Discrimination at Work

I hope you can get advice which will put you in a better position to find a solution. Why not try giving the support line a call today?

Sarah xx