Ileostomy

Hi sorry to hear about your night time problems.silly question but do you empty it during the night ?I find a gas build up at about 3.00 am so need to sleepily visit the loo or I might have problems.also I know its been 12 mths but has the stoma itself changed shape at all thus needing a change of hole in the bag.both ideas probably rubbish but good luck anyway

Kath

Thanks Kath , I also do the sleep walk once or twice in the night. I’m sure the size is ok too as no leaks in the day. It does come with its dilemmas does a stoma

thank you for responding 

Evening NickyP,

It happened to me a couple of times in the early days and stripping the bedding and taking a shower at 3 a.m. was no fun. My stoma nurse suggested that I use a Fusion applicator and a pair of Brava elastic tapes at each 48 hour pouch change. Instant result and no recurrence in the past 2 years. Wearing a long tee shirt in bed also helps the pouches (I have two) to slide over the sheets and avoid snagging.

Dulac

Thanks Dulac

Where do you get the fusion applicators and brava tape I’ve not heard of this

i always where a cotton nightie to bed now … how things change lol 

it’s just odd how it’s happening nearly a year in 

thank you 

Evening NickyP,

I get them via my GP from Messrs Coloplast. You might have to ask your stoma nurse to support your request to your GP. Surgeons and other NHS professionals seem to treat the stoma nurses with great respect, which is well-deserved and a pleasure to observe.

Dulac 

Hi just another pondering.you say you wear a nightie,do you wear undies as well.I wear cotton ones which hold the bag in place so it cant move around(not tight ones,just midi briefs from m and s seem to do the job.Im probably just saying stuff you already do but hehho.

Kath

Same for me Kath, with 2 bags I always sleep in underwear and a nightshirt. Just ordinary cotton ones from Matalan but they keep everything in place. 

Sarah xx

Hi Kath

yes I have my M&S big knickers on in bed, I’m thinking that a call to the stoma nurses is on the cards.

I haven’t spoken to them since they discharged me last July but they are so helpful 

thank you for your advice x

Hope you can get it sorted so that you get some much needed sleep.all the best.kath