Overgrown skin by stoma

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Hi,

I went to see my stoma nurse today as it was time for my check up and as it's been 7 weeks since surgery hopefully the last template cut for a while.

I'm using the Coloplast Sensura Mio Convex with the Dansac Tre seal, but lately the skin has been very red and one part looked miscoloured white where the seal is so was a bit if a concern.

Turns out I have what she said was overgrown skin around the stoma at several places and she used silver nitrate which burnt like hell, can still feel it now hours later. I'm starting chemo next week and the nurse said I shouldn't have to come in for another silver nitrate treatment and gave me a Dansac cream to put on for a few days and stop using the seals.

(Stoma nurse and chemo at two different hospitals).

I'm just looking for some advice in what else I need to do, should I change my bag once a day to put the cream on or leave it on for the two days I normally do.. forgot to ask the nurse and now I can't stop trying to search for answers. But also getting distracted trying to search for diet with an ileostomy whilst having chemo and chest ports - a lot in my brain at the same time.

Any tips would be useful.

/Em

latchbrook over 2 years ago

Hi Missem

I can't help with any tips but I noticed that your post hadn't had any replies yet. By replying to you this will 'bump' your post back to the top of the discussion list.

While you're waiting for replies you could also post your question in the ask a nurse section of the online community and one of the specialist nurses will aim to respond within 3 working days.

"Never regret a day in your life, good days give you happiness, bad days give you experience"

Kareno62 over 2 years ago

Hi Missem Have you managed to get an answer to your problem yet? I think I would be tempted to ring your stoma nurse with regard to how often to change your bag as she has seen it - it’s a tricky one to call as you want to put the cream on but don’t want to make it more sore by changing your bag more often than you need to.

Ive attached a link to a booklet that mentions eating with a stoma, low fibre diets etc. You may suffer from diarrhoea during chemo but won’t really know until you start. I took loperamide as my stoma output was always very loose but don’t remember it being particularly worse during chemo.

https://bowelcancerorguk.s3.amazonaws.com/Publications/EatingWell_BowelCancerUK.pdf

There sounds to be a lot going around in your mind at the minute but please don’t forget that you can always give the nurses on here a ring if you need a chat at any time on 0808 808 00 00

Take care

Karen x

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

Missem over 2 years ago in reply to Kareno62

Hi Karen,

Thank you so much for this - I did get hold of the stoma nurse in the end and it turned out ok. I had to go back for another treatment with silver nitrate but it seems to be better now. Touch wood and all that.

Thank you, the booklet is very useful with some things I've not thought about or have forgotten since I left the hospital.

I appreciate all your help.

Take care,

Em x

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