Hello my name is Heather I have just been diagnosed with brest cancer last week for the first time (and last I hope) Both my sisters have had cancer,one died seven month ago Im a bit scared of what to expect with the chemo. Can anyone tell me how soon after the treatment do you start to feel ill? How soon do you lose your hair?
Hi Jean, they are good points you make.I think that's why it would have to be headed 'useful tips' rather than claiming it is any sort of medical advice. At the end of the day it wouldn't really be any different than saying 'I use diflam for my ulcers' on this forum, it would just compact all the different gear into one folder rather than people having to ask and people having to repeat themselves. Like you say it might be a good idea to check. Will see if I can find a contact address xxx
I really hope we can get this off the ground. As you say it saves us repeating things like the Difflam and the Aqueous cream, excercises, drinking 2 litres of water a day. etc etc etc
she is a new lady who posted just now ; her mum is having a masectomy next week and she's looking for some advice , especially on aftercare have suggested she posts on here, but will search out her original post and bump it, as I'm no use to her on this particular subject! sorry to intrude! sue x
Hi All Think it will be a late night for me as i am doing Paulas break dancing which will probably last till 4 am lol. Great idea about tips and although they (mac site) might take a few days to respond they will get back to you Paula.
Enjoy reading all the posts and Kate enjoy yor sleep wish I could lol
Anyone still awake you can post here or get me on skype.(your probably all in the land on nod by not)
Large fly that flew in the door is doing my head in buzzing about. Will have to try and get it out or its dead (sorry fly)
Whilst I have been sick I have been developing a website to be exactly that. It is based around my story but as everybody is different includes a forum with space for hints and tips.....I wanted to use my experience to help other people. It is not finished yet. Hopefully will only take annother couple of months. When it is I will let everyone know the address so you can tell me what you think.
HI Marian - I was interested to read your profile. I have lobular cancer too. It was diagnosed on 20th July (well, My GP and I knew at the end of June) The tumour is 7x5x4! I am still waiting for a 2x mx and recon. (DIEP flap). I was told that it wouldn't be spreading to my lymph nodes as it was lobular so not to worry about wait. (the wait is because I have to go to another hospital in the next county). Now I'm not sure and feeling really worried. I'm a lot older that you but still.... I'l post if and when I get a date! love Wendy xx
hello Wendy My diagnosis was I think similar to yours. Originally my tumor was said to to 15mm and no lymph nodes affected. I has left breast mastectomy as am small breasted. It was then discovered that my tumor was 72mm and 5 lymph nodes were affected! It is tubulo-lobular carcinoma -is that the same as lobular?e I had to wait 4 weeks for my mastectomy I asked if the cancer could have spead to lymph nodes in that time and was told absolutely not. We have to believe what we are told. So you should try not to worry too much about the wait.(easy to say I know) Apparantely lobular cancer is difficult to determine by biopsy/mammogram which is probably why the diagnosis changed for both of us! Hello to everyone else sorry have not been in touch have had second FEC chemo and been grim but not as bad as last time! Steph I too feel like telling them where to "stick theirI FEC!!" I have been reading all the posts - we are growing! I think the idea for tips is a winner unfortunatley I have no idea how to do it. I don't even know how to post a picture of myself! Jean so glad your chemo is nearly over you first welcomed me to share in April and were very kind Love to everyone and although i havent mentioned you all am thinking of you Darylx
Hi Daryl - thanks for replying so quickly! I'm not sure if its tubulo-lobular but it all sounds very familiar. Mine too is ER which is a real nuisance as I have been having estregen implants for 14 years since my hysterectomy (I know, I know!) I had one in June which they can't fish out. My lump is so big now that I can't wear bras cos they hurt. The waiting is the worse and it would really help if they told the truth about the ability to spread but I'm trying to stay positive - that's my nature but this is sooo hard!
Hallo, everyone else. Jean - there will be such a party - certainly in cyberspace - when you finish!
