New to Share? Come and say hello!

FormerMember over 16 years ago

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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

FormerMember over 15 years ago

Hi,

Just wanted to update you all,

Have been for my scan of kidneys and bone marrow biopsy, scan was extended to my liver,spleen,stomach and lymph(sp) glands.
Scan showed spleen is enlarged but kidneys, liver,stomach and glands are all A-Ok. Speaking to the consultant after my scan he said he is now 90% sure it is primary polycythaemia but needs to get final bloods and biopsy back before he confirms things 100%.
Am due to go back for all results on Monday and will update you all after my appointment.

s to all

Michelle
x

FormerMember over 15 years ago

dear michele, fingers crossed for you xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxjackiexxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

FormerMember over 15 years ago

Hi everyone, i thought i'd introduce myself. Back in February i was diagnosed with a burkitts non hodgkins lymphoma in my stomach. I was given fours sets of chemo, i was given the all clear at he start of June. I went back to work at the start of August. Having lymphoma at 29 was a massive shock but thankfully i seem to have come through it. The chemo made me very sick and i lost alot of weight and all my hair. I was very positve throughout my treatment as was all my family. My wife has become very depressed since i finished my treatment as she is terrified of it coming back. Has anyone else had this issue with their family post cancer?

FormerMember over 15 years ago

Hi Ghodder, sorry to hear that you have been through all this and at such a young age, and it is wonderful to hear you have come through it so well. You will get so much support on this site (also look at the tags on the left of the screen as you will find threads to join for specific types of cancer). There are also many threads for family members, your wife may find comfort from others going through similar fears. I personally have not had your type of cancer but know that cancer in the family can turn everything upside down. It is quite normal for people to be depressed after the rollercoaster has stopped, both the sufferer and family. These fears can crop up especially when check up’s etc are due. Keep posting and big hugs to you and your wife, dee

FormerMember over 15 years ago

Hi There

I am new here. my sister in law has just been diagnosed with severe breats cancer and its spread to her glands and also to her base of spine.

She also has mental health problems which hasnt made it any easier. I am her next of kin and am finding it hard 2 accept this,that she has it in 3 places.

The hospital have said that chemo and radio and surgery are not optiions now. Does anyone know what they would possibly do and how do i get in contact with getting macmillan nurse help.

thank u all

from

zion

FormerMember over 15 years ago

dear zion,

so sorry that you've needed to find yourself here, but welcome anyway.

May i suggest that you copy your post on to the breast cancer thread started by Heatherann, which i will bump to the top for you - it will appear on the left of the page under 'discussion forums'. There are several lovely ladies on there who are all at different stages, and will welcome you with advice and support.

to get a mac nurse assigned, just asked to be referred by the GP - it shouldn't take long. there is also a mac helpline, details on the home page.

sue x

FormerMember over 15 years ago

Hi everyone, I'm new here and thought I would introduce myself My names Ali and My grandmother has just been diagnosed with tummy, pancreatic and intestinal cancer, Its a very tough time for all my family as this was really sudden she only started getting symptoms 5 weeks ago and now were being told its terminal and less than two months, the thing is I love my grandmother to bits(she raised me from age 4 and I look to her as my mother more than grandmother) and now I feel numb here she is this frail shell of the woman she used to be, I'm trying to think of her as I used to but cant I now live over 300 miles for her and being really honest I cant remember what she looked like before - not sure if this is normal - I'm going up to see her in 2 days and I don't even know if I will be able to hold it together any advice would be gratefully appreciated.

Ali x

FormerMember over 15 years ago

HI all my name is Barry i found out on thursday that my mum has bowel cancer and its terminal she is only 56 it has also spread to her kidneys i live in yorkshire and she is in hospital in kent i went to see her straight away and have just got home, i am only just getting my head around it all and so is mum she has lost so much weight and is in alot of pain, we have not been given a time but it look like it,s only months

In a few days she is going to discuss chemo the pros and cons and see what help she can get from Macmillan. i am aprehensive about the coming months ahead and mum is scared.

FormerMember over 15 years ago

Hi, baz
welcome to 'Share', but so sorry that you need to be here.
what an awful thing for you all to have to come to terms with, made so much harder by the distance involved. you will find support and advice here from many who are in a similar situation to yourself.
May i suggest that you go to the left side of the page and 'search by tags'; follow the links and copy your post on to a bowel cancer thread; it's more likely that it will be seen by the people who can help you most.
I wish you and your family all the best on your journey.
Sue x

FormerMember over 15 years ago

Hello there!
I have NEVER done anything like this in my life before, so I feel a little sef concious. My Dad is 79 and was diagnosed with Mesathelioma in March 2008.
Until 6 weeks ago he was able to walk, talk and generally live his life and it was easy to forget that he even had the disease! Now he is on oxygen 24/7 and confined to his chair all day. He can still manage to go to the loo himself but the exertion causes him terrible breathlessness and takes longer to recover each time. Yesterday he felt that his chest was very tight and found breathing very difficult. My Mum is 80, has cronic Asthma, Oseoperosis in her spine and had a Stroke 7 weeks ago! At the moment Dad has a carer to come in each morning and wash him, but persuading them both that they need more help is very hard. Mum feels that if she askes for more help they will think she can't look after him at home and he will be taken into Hospital. Something that he is, understanably scared of. It is truely awfull to witness a strong, independant man turn into this frail man sitting on the sofa wearing a mask and gasping for breath. The Oncologist says that there is nothing they can do regarding the fluid he has in both Lungs and can only give him sleeping tablets to alleviate his anxiety at night. I feel pretty useless eve though I do as much as I physically can for them both.
Sorry to sound like a moaning minnie! I just need to get it off my chest. Thanks for reading this.

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