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New to Share? Come and say hello!

FormerMember over 16 years ago

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Whether you’re here to talk to others, join a group, ask questions or just listen, everyone is here to offer emotional and practical support to help you with your cancer journey.

We know it can sometimes be confusing when you first arrive, with lots of forums and groups to choose from. So this thread is to welcome you, make friends and help you find your way around the site. Whether you are a patient, family member, friend or a carer, feel free to post any thoughts or questions here and other Share users will be happy to help you navigate around the site and find what you are looking for.

FormerMember over 16 years ago

Hi

I am new to this site, just signed up!

My mum was diagnosed with ovarian cancer stage 3 last week, looks like it has spread to her bowel and liver too, it came as a complete shock as we had no idea, she went to the docs with some pain in her abdomen and 3 weeks later here we are! she starts her chemo soon after the results of her biopsy come back then an op and then more chemo.

Don't know what the road ahead is going to be like apart from hard and long and obviously very emotional!

Not sure what more to say really x

FormerMember over 16 years ago

dear lash2007
so sorry you needed to join this site, but welcome.

yes, the speed with which things happen when cancer enters your life is quite scary. however, you will find much support here. May I suggest two things:
fill in some details on your profile, so that you don't have to keep repeating yourself. You can put as much or as little as you like, and can remain totally anonymous if that is your wish.(have a look at mine, if you like - i found it useful to keep a log of what went on in my husband's life. Many people choose just to write a brief synopsis of the problem, but I don't do 'brief' as you've no doubt gathered!!)

also, if you go to the left side of the page and click on 'tags' (in blue); follow the links to 'ovarian' and post on one of the threads there, you will find that your post is more likely to be read by someone in a similar position to you and mum. i'll tag this post with 'ovarian' and if others do the same it will appear in the appropriate place.

Yes, it will be a long hard, emotional road, but there will always be someone here who will listen , share or advise you.

Keep posting
sue x

FormerMember over 15 years ago

hi my name is trevor i am 36 and have 3 kids aged 14, 7 and 3, since the middle of april my life has completely turned upside down, for about 2 months my 31yr old wife anna had not been feeling well and had regulary been visiting her gp. various things were suggested eg heavy periods pregnancy etc but nothing really was done about it, eventually after about 6 or 7 visits a scan was booked but 3 days before her scan things got so bad that she was taken to hospital with suspected appendicitis, while in hospital another pregancy test was done 3 different doctors examined her and she was put on a drip overnight,the next morn she was going to get a camera put in to have a look, but because she responded well to the antibiotics overnight this wasnt done and the next day she was discharged it was explained as pelvic infflammatory disease, we had to return to hospital the following day for the scan which showed up a mass in her pelvis which was 10cm by 6cm, we were told to try not to worry ahere was several other things this could be apart from cancer, we were given an appointment for 6 days later but we had to return to a +e at our local hospital the next day as she was so ill, she was sent home again then we visited our gp again 2 days later as she was very ill but he didnt think she should go to hospital so we went home again, thenext day she was so ill i took her into hospital again the first thing they did was another pregnancy test then put her back on the ward were she had been before, the following day a doctor took us into a side room and told us it was ovarian cancer but there would be treatment, then the following morn they took her into surgery, before i saw her again the surgeon came and told me that it had spread into her stomach and there was little hope he said she may have 2 months at the most but she died 5 days later i still cant believe it has happened so quickly and that none of the doctors picked it up before they did especially when it was so bad it killed her so quickly,if it had been picked up even 5 or 6 weeks earlier it probably wouldnt have saved her but it might have given her a chance to prepare and

FormerMember over 15 years ago

Dear Trevor
So, so sorry to hear about the traumas you have been , and are still, going through. You will find many on this site who have similar stories to tell; misdiagnoses, late treatment,operations which have gone wrong - every one represents a tragedy in terms of a human life,and we understand how you are feeling. yes, your world is turned upside down and will never be the same again but, like many of us, you have young chikdren, so giving up is not an option.
There is a thread here called 'coping with loss'; (top of page, left side, 3rd one down under 'We talk about cancer') - if you copy and paste your post there, you may find that soeone in a similar position to yours will se it and reply.

i wish you well on your journey

Keep posting

Sue x

FormerMember over 15 years ago

Dear Trevor, I am so sorry that your young wife went through such a harrowing time - you and your children must be heartbroken and also deeply shocked that everything happened so quickly. And what anguish for you to be left wondering if she could have been spared much of this if she had been diagnosed earlier.
I hope you all have people you can talk to about this.
Also, as Susan said, it might help if you could copy and paste your post and post it on the 'Coping with loss' forum.
You and your family are on my heart and in my prayers.
Christine

FormerMember over 15 years ago

Dear Trevor
I am so sorry; your story is heartbeaking.

I hope you find practical as well as emotional help for yourself and your children.

I am new to this site but often can't sleep; I don't know if chatting online is going to help me yet or not, but I hope it helps you. Nights alone are terrible aren't they.

I don't know what help will be available in your area ( I am in Devon) but be strong. Your children need you so much.

Best wishes

Jane

moomy over 15 years ago

dear Trevor, my sympathy for such a terrible loss for you and your young family, I do hope that you will be helped in both emotional and practical ways to cope with such a sad event....and well done for plucking up courage to tell your story here too

Moomy

FormerMember over 15 years ago

My deepest sympathy to you and your children Trevor. Stay strong.
John

FormerMember over 15 years ago

Hi all,

Just joined the site & have to say that reading through the various posts on here has been encouraging.

I have done quite a lot of searching for sarcoma & sarcoma sufferers on the net, with the main
aim to get on a forum & talk to people about it & read through their own experiances.

My wife (Rebecca) was recently diagnosed with Myxoid Sarcoma which is in her foot.
Ive been told that it is a rare tumour & even rarer in the foot.
Following a CT scan on her chest, she also has 4 lumps or nodules in her lungs, which
may be related.

She is due in to have her operation on her foot at the end of June.
The surgeon is confident that all of the tumour can be removed, although the nerves feeding the
underside of her foot will have to go as well.
This will cause the underside of her foot to be completely numb & without feeling once
this nerve is removed.
Radiotherapy may follow afterwards, depending on the success of the operation.
A possible amputation may follow if the whole of the tumour is not removed.

The lumps found in her lung will be monitored following her foot surgery.

We are currently attanding Royal National Orthopaedic Hospital Trust in Stanmore & have found that
our surgeon (Mr Briggs) & the Macmillan Nurse (Julie) to be excellent.

Does anybody know of any Myxoid Sarcoma related sites anywhere ??
I have had a look, but with no luck as yet :(
There seems to be a lack of sarcoma or sarcoma related help sites (apart from this one).

Anyways, thanks for reading & any advice is truly welcomed.

Paul..

FormerMember over 15 years ago

Hi Paul

I'm sorry that you have had no replies so far. It may be that no one can answer your question I'm afraid. Have you tried searching under Tags for sarcoma? Just click on Tags in green then use the search box. Alternatively, as not everyone reads the Newby thread, you could try starting a new thread with Sarcoma in the title.
All the best

HarryB xx

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