My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Hey I'm new to this scene, not even sure if I shoud be on here! Recently been told I have a low grade brain glioma which has freaked everybody out but me as I was expecting this news. Have an appt with neurosurgeon in 2 wks, want to know what to ask him. Have right side sensation problems, numbness, writing a nightmare, aches and pains etc, lesion in left parietal lobe, 3 mris 6 months apart, can somebody tell me if I have cancer or what? need to knw and am not wanting to be pacified! x
Hi Jeanyb, I inhabit "The We Talk Brain Tumours" site and happened to see your message. We are all a bit quiet at the moment due to one of our lovely leading ladies losing her hubby at the weekend. Why don't you paste your message onto that thread and someone will be along to advise you. You say it is low grade, is that 1 or 2? We look forward to meeting you over there. Martyn
Hi Jeanb sorry to hear your bad news, from what ihave read grade 1 or 2 tumours can be malignant bu t can also be benign your consultant should be able to help you with your answer to that one how are you feeling love gayle xx
I am knew to this scene my husband has just been diagnosed with glioblastoma what is it? I know that its not good, but how bad is it really i am too frigtened to ask the consultant incase i get bad news, i have read through all of these posts and i dont like what i am reading can any one give me any assistance and advice, i suppose i am going to have to know what is going on eh? He has to get an operation and chemo and radiotherapy thats all i know please help me
hi izzy,copy and paste your post and put it on the thread called "we talk brain tumours".someone will be along to answer your questions in more detail than me,so i'm not about to even try.gliblastoma multiforme is a deadly cancer that cannot be cured,chemo and radiotherapy will extend life,to some extent,but it isn't a cure.please tell me the docs have given you "some" idea about your hubbys condition????Tammy.xx
Thanks for getting back to me so quickley the doctors have not told me much about my hubbys condition at all only that he will get an operation then he he will get radio and chemo therapy, its only when i found this site that i realised that this was as bad as this i thought he might get better one day, but it doesnt look that way now does your hubby have this too.
it's my mom who has this awful beast!!!the op your hubby will have is called a debulking,where they will remove some of the tumour,unfortunatley these tumours almost deffinatley grow back,although removing part of it will slow down growth.my mom then had 6wks of radiotherapy and chemo together,then a further 6 mths of chemo.try reading my profile,this will give you a better picture.you should also create a profile of your own,instead of repeating your story over and over.sorry you have had to come here,but you will find the answers and support you need,i promise.mom was diagnosed exactly 12 mnth ago and she's still here.i don't want to give you false hope,just that you have time on your side.saying that,everyone's tumour is different,so sharing experiences is what people offer here.like i said before,i really do hope you post on the we talk brain tumour thread,as there are many people there,who will be willing to guide you in the right direction,and the upbeat banter on there keeps you going.i really do wish you and your hubby well and that you ask the doctors all you need to know,they are the only one's who will know about your hubbys tumour.stay strong and also positive.love Tammy.xxxxxx
Hi Izzy Sorry that you have had to join this site, unfortunetley what Tammy says is true, glioblastoma has no cure at this time hopefully one day these people will come up with a cure for this horrible disease. The treatment that you have been offered is the same as what my partner has been getting, he is phisically very well but his personality has changed completly more than once. You should speak to your consultant or your specialist nurse they will tell you everything it is very scarey i have been there i was terrified to ask but i did and so will you when you are ready, if i can help just let me know
Sorry to hear about your mom, hope she is ok. I am glad i got talking to you, you have helped me lots, i really did not know anything about this evil disease you have helped me alot thanks very much
