My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Hi everyone Just back from the spiritulist church, Martin got a message from his father, told him to stop thinking about quantity of life but to think of quality, what do you guys think? Also we went for spiritulist healing Martin says he feels so well after it have any of you tried it love Gayle xxxx
This is my first time on this hope im doing it right. My Husband Paul was diagnosed with a glioblastoma in December 2006 and when we got the news we were devestated and didn't no where to turn for help or just someone to listen to how i felt i didn't want to upset family anymore than i had to as pauls dad had died two years previous with a tumour on his brain stem.Paul had a debulking operation followed by 30 lots of chemo and radiotherepy followed by 6 months high dose chemo, he had a drug called temozolomide the sickness was controlled by various anti-sicknesss tablets. Its now coming up for twelve months since his last treatment. He has a scan at the end of November. We make the most of everyday and paul has managed to do a bit of fishing thanks to some fantastic fellas from the fishing club he is a member of. If you want any qustions answered about the treatment and side effects please ask as it would be good to be in touch with someone in the same position as myself.
hi Kim, welcome, yes you are "doing it right"! Your husband must be doing well, relatively speaking, now almost 2 years from diagnosis - how is he doing day to day? I have found it is good to share thoughts and experiences with others in the same situation. you could also try the "we talk brain tumours " thread where there are many more people who are at various stages of the journey with glioblastoma.
gayle, no I haven't tried the spiritualist church! its not something I'd go for usually, but if it makes martin feel better and doesn't do any harm then why not. is he any better with regard to his attitude to you now?
Welcome, hope you and Paul are both well, how is Paul 2 years after with all that treatment has he suffered any bad side effects from the treatment, my partner was diagnosed in june this year, he had the debulk straight away then 6 weeks of radiotherapy and temadol, he has already suffered a complete personality change, really bad shorterm memory loss, but phisicaly he is very well, he is on the go 24 hours a day i dont know where he gets his energy from, did Paul suffer any of these symtoms. love gaylexx
gayle adairs, hi hope all is well with you today.. you said that martin gets alot from going to a spiritalist church,well my dad went to one for the first time last week and also to see a faith healer,he also said that he felt he had felt alot better,my nan came through to him but he didnt reply cause it scared the hell out of him!!!! hes off tonight for his second meeting and my sister is going with him,hope they will except any messages thta come through!! he had a healing session with a faith healer who claims that she can and has cured people with brain tumours of all sorts,and dad has really built his hopes up that this a miricle cure and when i asked him to not build his hopes up we had a slightly heated row i was only trying to protect him,but i said sorry and were ok now,if it keeps his hopes up and he feels better for it then who am i to say anything..dad did say that after she had placed her hands over him he felt extreame heat and that he felt more energetic,than he has for a long time,how did martin feel?
We have been going to the spiritulist church for some time now and we both get alot of peace and contentment from going, we have both got messages from our parents, Martin got one on sunday from his father who told him to concentrate on quality of life rather than quantity. Also like your father we get spiritual healing that makes us both feel really good miracles can happen but we were not told that this is a cure but we certainly benefit from going, i hope that your dad does too. love gaylexxxx
Thanks for your reply. Pauls doing really well at the moment only problems he seems to have had since the treatment are short term memory loss and slight weakness down the left side he does tend to get tired fairly easy but manages, we had no personality changes. Some days are better than others but he just says he's having a lazy day he did get a bit down when i went back to work part time but I bought him a Westie pup and she has done wonders for him he came on leaps and bounds and he manages short walks and is glad of the company some days he does more than others but says he's not worring about the tumour. He says if he can't change anything theirs no point worring about it. Wish I could do that. When Paul was on the chemo he used to complain f a metalic taste they said it was the chemo. Paul also got very hot and still does occasionally.He also had side effects when they started to reduce his steroids and they had to put them back up for a nother month before they started to reduce them again and now he isn't on any so he's doing really well. take care
Hi Kim. It's really fantastic to read about someone doing so well. Can I ask if Paul is working at the moment ? My husband, diagnosed in June 07 is also on no medicine at the moment, doing really well and hoping to start gently going back to work in a few weeks. It will be hard but he want to get back to normal.
Just in case you are not aware, though you probably are, there is also another thread called We Talk Brain Tumours. It's busier than this one but also has a lot of lovely and very knowledgeable people talking and also on it. There is also a lot of information there. But this is a great thread too of course. (Sorry, I saw too late that Daisycat had already mentioned this.)Â
hi everyone hope all is well today. well just spoke to dad to see how he got on with his spritalist meeting last night and he started to cry as he told me that his mum came through and was sending him a pink budded rose(her favorate flower)to sybalise a new life,dont quite no what to make of that,ither his passing (when ever that will be)or him going to pass the 2 year mark (told this is as long as hes got left),what ever it means it as really given dad a good boost to his well being he sounds so happy and mum said that hes not stoped smiling so thats good enough for me,some good news for a change..... hope all is well with everybody and thatyour all as happy as can be.
Good to read some good news for a change, glad both your husbands are doing so well, 2 years on, Kim howmany lots of treatment has Paul had?
Hi Sarah glad that your dad enjoyed going to the church, most spirits when they come forward leave a flower to show their love, you should go along with your dad sometime it really is very good i feel so good after th healing. Like your father most times that Martin goes to the church he will get a message is it becuse they are so ill? i dont know i only get them from time to time.
