My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Evening Just a very quick one from me - kids been shipped out for next few nights as matthew goes into hosp for tests tom - we wont have any news on how he is doing till 5th march - the clock it ticking...
Julie - yes he is on a trial here in the UK, Glaxo smithkline are doing one - we were offered it by the Marsden - its 2 drugs, one stops the blood supply to tumour and the other one stops the cancer signals getting to it. The drugs are Lapatinib & Pazopanib they are getting some fairly promising results by the sounds of it. Hubbie is tolerating the drugs so far although he is having problems with his knees when he wakes up he cant weight bare on them so hospital will look into this tomorrow it could be a side effect - we shall find out if its done anything on the 5th march. if the tumour has not grown or has even perhaps shrunk he will stay on the trial if it has grown they stop so its a big day. We only got offered the trial as nothing else has worked - there was no more conventional medicine they could give him, and he was also in all other ways fit and met all their criteria & I guess as he continues to work they had to try 1 last thing.........
I slept well last night but thats probably due to the amount of alcohol I drank last night which was far too much and my head hurt this morning - but thanks to my mac/facebook mates they pulled me out of the black hole i was in last night - you know who you are xxxxxxxxx
gayle, CH , lesley, martyn, daisycat, carrie hope you are all ok?
your all in my thoughts as always - off to pack hubbies hospital bag now and charge my nintendo to keep me amused!
Dear Emma thank you so much for that info and I am sure when the big day comes everything is going to be absolutely fine, if there is no blood supply to the tumour it cant possible grow it has to shrink. Emma you mentioned you are on facebook I am 2, it would be great to also link up with you on there, now on face I am in my old name of Julie A Sagar if you would like to add me as friend the profile pic is of myself and my niece, I have my arm round her.
Enjoy your evening and dont get to drunk but isnt it easy to do just that???
Had a nice day today, had an old workmate here for the day it was so nice too see her, not seen her in a long time, felt normal today like pre bt days, but then reality hits.
Emma, you are having such a rough time at the moment, I usually get stuck into the wine too, and regret it the next day but it can be so hard at times, it must be such a worrying time for you at the moment keep us all posted with Mathews progress, he will do well on this trial, he has so much fight and determination, thinking of you both and the girls. ((((((big hugs)))))) xx
Carrie, sorry to hear that B is still in the hospice you must be missing him so much, you definetely take a full tablet tonight they wont do you any harm, and I still always wake up if Martin needs me
Julie, glad you are getting support on here everyone is so nice I dont know what I would have done without them all over the past few months, just being able to speak to people going through the same is incredible, not even sore today from the gym that is a surprise lol.
Thinking of you all, including my dear friends I have not mentioned.
just a quick note before I go back to the hospital hubby still in :( I miss him so so much he is improving ever so slightly but still not well enough to some home to me I feel like running so far way with him any way folks I shall have to go just a quick update for you all I have reaad all your news and I am thinking of you all new and all ye oldies too.
just a quick note before I go back to the hospital hubby still in :( I miss him so so much he is improving ever so slightly but still not well enough to some home to me I feel like running so far way with him any way folks I shall have to go just a quick update for you all I have reaad all your news and I am thinking of you all new and all ye oldies too.
just a quick note before I go back to the hospital hubby still in :( I miss him so so much he is improving ever so slightly but still not well enough to some home to me I feel like running so far way with him any way folks I shall have to go just a quick update for you all I have reaad all your news and I am thinking of you all new and all ye oldies too.
just a quick note before I go back to the hospital hubby still in :( I miss him so so much he is improving ever so slightly but still not well enough to some home to me I feel like running so far way with him any way folks I shall have to go just a quick update for you all I have reaad all your news and I am thinking of you all new and all ye oldies too.
Izzy I hope your hubbie is feeling a bit better, it must be really hard for you, I know when Stephen was in hospital before he was diagnosed it nearly crippled me running to and fro and unfortunately his hospital was 35 miles away from home so my heart goes out to you. xxxx
Gayle so glad you had a nice day with your friend from work, isnt it a nice change just to have a bit of normality for a short time. At weekend Stephen is going to his parents for a few days, they dont live local to us, so I am taking Dan and his friend to Alton Towers on Sat ( I know I must be mad) I bet its freezing. xx
Emma how as Matthew gone on today at hospital I do hope he is ok, please try and let me know. I have also mailed you on face xxxx
We have a rough couple of days Stephens had a throat infection and has been really weary, also he seems to be losing a bit of his memory and he is getting worried it wont come back but I am sure it will when treatment finished, roll on next Friday.
Anyway speak to you all soon Take care everyone Love Julie xxxxxxxxxxxx
Just typed a post and b****y lost it - grrrrrr! Anyway, I'll quickly try again.....
Izzy - didnt realise your hubby was still in hospital, for some reason I thought you had him back home again...i mustve missed something? Sorry. keep us posted. Thinking of you both. See you've had a bit computer madness again!
Carrie - Must be so difficult at the moment - hope you managed to get some sleep. Steroids are the double edged sword arent they - my dad's back up to 6mg, the lowest he's ever managed was 3mg.
Gayle - sounds like you enjoyed a nice day with your workmate. Hope Martin is still as good. Might do as you said and get myself back to the docs to get more sleeping tabs...i think this first scan is really preying on my subconscious and I cant sleep - find it so difficult to get up just now...but that's nothing new!
Emma - fingers crossed for you at the hospital today - important things going on just now eh.
Julie - I take it your hubby is going through the first treatment at the moment? Great if you can manage to Alton Towers - never been but Id love to go! How old is your boy? My boy is 8 months,, he's a star, such a happy, smiling wee thing! he was only 8 weeks when my dad was diagnosed. I've a girl too, Amber, who's nearly 4. Im on facebook too - there's quite a "mac" contingency now! Im Lesley Woods (Edinburgh) - i'll no doubt be on later so I'll look you up.
Had a good day today, after my dad had been at the diabetic clinic I took him and my mum for a drive down to North Berwick (for anyone who knows me - I dont DO long drives - streets in Edinburgh are hard enough, im so bad!) - Amber was paddling in the sea with her wellies on and it was so nice.
Izzy, sorry to hear your husband is still in the hospital, it must be difficult for you, hopefully he will be home with you soon.
Julie, Alton Towers sounds really good I havent been there in years Martine would really love to go there maybe in the summer if Martin is well, Dan and his friend will have a ball. Sorry to hear Stephen has a throat infection hope he is feeling ok.
Emma, Hope Mathew got on ok at hospital today, and also hope you are feeling loads better.
Lesley, sounds like you have had a good day today at Berwick, your dad would enjoy seeing Amber paddling in the sea bet she did too, you'll have to post the pics on facebook and let us see. Scans are really scarey they make me ill, sleeping tabs help a little I just would not sleep without them at that time unless I done i a couple of bottles of wine.
Joan, Carrie, Karen, Diane, CH and everyone thinking of you all.
Went back to the gym today, think I might have overdone it a little and may be a little sore tomorrow, tonight Martin and I are on our own Martine is staying with a school friend I miss her so much but bet she is having a great time.
