My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Hello especially to Izzy. Hoping that things have improved since yesterday. Thinking of you both and sending you an even bigger hug. It seems very quiet on here tonight.
Joan, Izzy & Gayle, I hope things are better for all of you.
Mum and I met the consultant yesterday and he has recommended a six week course of RT. Unfortunately things have gone totally pear shaped today. I couldn’t contact Mum so went over to see her. I found her lying in the middle of the floor. She had been sick and was barely conscious. Called the ambulance and she is in hospital as I type. They though that she might have had a bleed but after a scan they decided that it was a massve amount of swelling. They’ve given her Dex intravenously and she seemed more settled. I don’t know what I’ll find tomorrow.
firstly hi i am new to this ony joined today.my husband too is suffering from this awefull illness he too was diagnoised in july last year,he has also had debulking surgery,and a 6 week course of radiotherapy.im please to say he had a scan in late november which showed the tumour had shrunk.
How awful it must have been to find your mum like that. Let's hope the hospital can make her comfortable and sort out the symptoms. BTs are bad enough anyway, but when complications arise they are really horrible.
I hope you are able to get some sleep tonight. You need to look after yourself too.
Izzy, sorry to hear your hubby is in hospital, thinking of you both - keep us posted to how he is.
Gayle, hope your all ok? - Dr Rooney was down at my mums on Wednesday - they thought he was lovely - my dad found it quite therapuetic to talk so honestly about things - I think he talked about how he felt about death etc amongst lots of other things that he possibly hasnt talked about before . I wasnt there but I told my mum to mention your and Martins name, but of course she forgot the names but said to him she though you were from Glasgow!
Emma, excellent news about the trial.
jampix - just seen your post as im typing and wanted to let you know that after diagnosis and before RT started, my dad suffered a similar episode - I went down to the house and he was lying on the floor with vomit everywhere, just groaning as his head was so sore - it was awful to witness and because we were new to all this I thought this was how it was going to be from now on - oh it was horrible, anyway, they said it was the swelling and gave intravenous dex and he was sorted out within a couple of days - fingers crossed for you and your mum.
Joan, Carrie and everyone else, wishing you all a peaceful weekend.
Becca - if your reading this, hope all is ok with your dad - will pm you shortly.
Just a quick hello before I retire to watch midsommer murders, have had one glass of wine and really cant be bothered with anymore so now having some coke! lesley xx
Carrie - Thanks for your post. I hope that B’s having good days and that you can both make the best of them. Who knows when things might happen?
Charliebigarve – so sorry you find yourself here. I’m relatively new as my mum was diagnosed on the 29 Jan 09. I’ve found that they’re a good source of support on here. It’s helped me in such a short time.
Lesley – Thank you so much for the postive post. It’s frigthening when it happens as nobody prepares you for it. I’d almost convinced myself that she wasn’t going to be there tomorrow. The hospital had even got to the point of asking the dreaded resusitation question. I’ll get those positvie thoughts going again. This is why I find this discussion so helpful. I hope everything is OK with your dad.
I think things are a bit quiet here tonight, but stick with us. I've not been posting for long. If you read my profile you'll find that you have been on your journey longer than me. I'm glad i found this site as I think only people who are actually going this can understand and although the group is quite small i have found them to be really helpful and understandng when you want to sound off about something.
What a hell of a two days hubby is stll in the hospital but he is little better tonight all going well he shall be home with me on monday I have missed so much nobody to snuggle into at night its so awful he everything to me I just hope a cure for this comes along soon hubbys temp is down a little and sickness has subsided keeping my fingers crossed he is home on monday. The roads are still very dangerous up here with more snow forecast for tonight just typical we live quite remote and the hospital is in the town centre a good 40 min drive in good weather.
Karen sorry about your mum hospitals are frightening are'nt they hope she picks up soon for you keep posting it will help you. Charlebigrave sorry that you find yourself here this is such a horrible disease affecting so many lovely people all the time you will get lots of help and friendship on here from lots of lovely people Lesley Joan Gayle Carrie and Emma thanks for all you well wishes I will keep you all posted look after yourselfs and your loved ones no whisky for me tonight ladies incase any phone calls from the hospital
Izzy glad to hear hubbie is a little better I will keep everything crossed that he is home with you on monday x
Karen I hope your mum is also a little better - thinking of you x
matthew seems to be tolerating the drugs at the moment - although last night he was really confused which is a little worrying & he is still in bed which is unusual for him but hopefuly when he gets up he will be ok.
Gayle hope all is quiet for you and you managed a few cheeky vimotos last night!? x
Lesley Joan Carrie - hope your ok girls?
Kids fighting again so off to entertain them and its only half 8!
