My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Hopefully you Paul and the kids will have a fantastic time, at Benidorm, you all deserve it very much, go to the rock and roll pub up next to flamingos its fantastic and kid friendly.
Hi everyone, Just calling in to catch up after being away for 3 days in Ireland to see some very good friends of Becky and mine. Great time and cooler than here, but still nice.
I've read a number of pages tonight and would not know where to start. Some sad news and some hopeful and encouraging.
I just gave a quick update on FB last night as I was so shattered but my darling Mum had a fantastic send off, the church was packed and there was even more folk at the cemetery then about 100 joined us back at our local bowling club for buffet lunch etc afterwards, I must have had 20 or so from my own work along with close friends of mine which was so lovely, the sun shone brightly and as my brave Dad and hubby and the rest of the family lowered Mum into the ground I felt a sense of relief knowing that my angel was at peace, she had suffered more than enough, she is buried on top of a hill facing downwards into the sea its so beautiful, I am going to miss her so very much but even though I would do the 2 years again of getting her thru a dreadful illness I would not want her back to suffer that again, she deserves better and so does Scott, Dad and I as our life been so much on hold the last year or so.
As we entered the church the song that I had chosen for Mum was called simply being you it was very emotional and I heard alot of sniffles from the others as the words were played:-
For being there to comfort me when little things go wrong for letting me discover things that you knew all along for the tender hugs and kisses and the loving things you do i'd think to thank you Mother for simply being you for the times your there to wipe away my tears if they should fall for when dreams would wake me late at night you'd always hear me call and when I need someone to listen and don't know what to do, for these times thank you Mother for simply being you
your the best friend I have ever know you have shared my joys and fears and the love that binds our hearts just seems to grow from year to year your my greatest inspiration in everything I do, there is no secret to the way you are your simply being you
The tribute to Mum done by the minister (we couldn't have stood up and spoke no way) was beautiful also the hyms that we chose, the flowers with the words MUM were gorgeous and so full of her favourite red roses.
I am going to miss the woman who was my inspiration, the woman whom I knew loved me like no other person will do she will always remain in my heart and the memories of her are mine to keep and boy they are many, all the good times I will cherish forever,
Our order of service had a verse saying:-
Death is a heartache no-one can heal love leaves precious memories no-one can steal
to live in the hears you loved will never die.
Goodnite my angel sleep in heavenly peace.
Well folks I am going to take a break from the site, its not saying that I won't post again but I feel for myself and my family and friends around me I have to take a back step now, I have withdrawn from the BT group I attend, no way could I still go and give others the hope that they deserve unfortunately I don't have hope in this horrid illness anymore but I always did right up until the end with Mum and thats what all you lovely folk still fighting it have to do, you have to believe that you never ever know the outcome and I hope for all of you, your loved ones will live on for a long long time.
For those of you who keep in touch personally with me, I always will be there and you know that I am there for any of you at anytime, I can only thank you all for being there for me the last few months but now for me its back to concentrating on my home (which has been a tip for months), my Dad and my husband and in the latter stages my work and the memories of my Mum will never leave as they so tucked away in my heart, I have a ring of hers on my finger forever more, my new bracelet that she gave me for my last birthday and I am going to get a white gold locket for my neck and carry her with me everyday.
Folks I wish you my all to beat this illness please stay strong where I got the strength from I will never know but she was my precious Mum who needed me so very much and I don't regret one single thing.
Hi Lorraine it sounds as if you did your mum proud, the fact that you have no single regrets is lovely to hear, take care and cherish your memories of your dear mum - love DianneJXX Dianne sorry to hear your Dad is in hospital hope things improve. Gayle is there a pain specialist involved for Martin? if not what about asking for a referral as a nurse we were always taught "there is no excuse for a patient to remain in pain" the same goes for nausea too, what combination is Martin on for the nausea? Have a great holiday Lesley and Paul did you get insurance as we are considering going away as H's scan was a good one? Take care everyone Love DianneJXX
LORS - You did your mum proud, what lovely heartfelt sentiments. The plot you picked for her sounds lovely, really lovely. I hope you are doing ok, i know how the first few weeks feel like a whirlwind of meetings, visitors. I hope you get some time soon to spend with your lovely dad and hubby. I know it doesn't suit for everyone and im speaking from my own experience - but maybe if you were to go away for a few days all of you and just get away from the phone and tea making! It did help us a bit. Anyway i have your number and willl keep in touch xxxxx
Debbie - Im so very sorry to hear about your lovely dad, im glad you all had the oppertunity to be with him and say everything you wanted to to each other. I wish you lots of strength and sending you lots of love.
Lesley - Love, im so sorry your dad has been poorly on top of everything else, dad caught that bug too and landed in hospital, which in his already confused state heightened his distress - the sooner we got him out the better. I know your mind will be preoccupied with things at home, but the time away with hubby and the little ones will help you im sure. Take care of yourself xxx ps you found that phone of yours yet or are you still incomunicado? xxxx
Gayle - how are you? Poor Martin, im sorry he hasn't been too good lately but if Rampling isn't overly concerned (which is easy for him to say - i know) then that can't be too bad - but i k now that its you and him who have to live with it. Pat on the back to wee Martine - what a star xxx
Diane - I'm very sorry to hear that your dad is not so good, I do hope he starts to feel better soon. You really have had a time of it lately - thats so unfair, i hope you are doing ok. Lots of love xxxxxxx
Well im back and kind of at a loss. For weeks now i have something to plan or to concentrate on...now i dont. I need to get a job, move back to Glasgow, start to re-build my life i guess. Its been seven weeks since he left us and my coping strategy of keeping busy is losing momentum. I have had a series of nightmares lately (even on holiday) my mind wanders constantly to him and to that last day...ah dear - its all very upsetting still. But like Lorraine, i will be stepping back from MAC too, may pop in every once in a while to see how you all are. A lot of you have me on facebook, so you will prob find me there sometime. Really just wanted to say thank you to everyone for listening to me and putting up with me when i would go off on one, and for basically just being there. I will be there for you too, if you want to get in touch just FB or text me. What a braw wee site this is, as is WTBT...Over this past year i honestly dont know where i would have been without you all.
Thankyou thankyou thankyou!!!!Just wanted to say a big thankyou to all my lovely friends who have supported in the past few months.
Like Becca,its time for me take a step back,to focus on helping Mum prepare for Dads funeral next Thursday (at the same church where they were married.)Big dilemma is how can we choose only 4 favourite songs of his when he loved millions!!!! Its the strangest feeling only been two days but my brains coping strtegy is that hes gone on a fishing holiday with his friends(as he did every year prior to the tumour),Im sure at the funeral my world will fall apart and I will realise that I have lost the most amazing person I have ever met in my life....he really was a wonderful human being and touched so many peoples lives.
I found solace,support and understanding from this thread,reading your parallel stories and knowing I was not alone on this terrifying journey gave me much needed comfort at very dark times.
To all you lovely people fighting the fight...please keep strong and ever hopeful...hold onto the possibilities of life for your loved ones and never let it go.My Dad was still optomistic that he had two years of life left untill his last few days and I know it gave him the inner strength he needed each day to carry on.
Love to each and every one of you...I will try and pop on whenever I can Debbie
Dad was taken into hospital last Sunday, he was unconscious and showing all the end stage symptoms I had read on brainhospice.com. We were told the worst he had days to live.
I stayed with mum all week, going home friday to see my little girls, we spent every day at the hospital (all day) and I am so so glad I did as he lost his battle early this morning. Although I wasn't with him at the very end (he wouldn't have wanted me or my sister to see it) I managed to tell him everything I wanted to during the week. He is at peace now no longer suffering the indignity of this horrible disease.
I wish everybody all the best and good luck, thank you for the kind support over the short space of time that I found this website.
so, so sorry to hear about your loss. No more pain, no more suffering for him.
I am so glad for you that you had the chance to sit with him and tell him what you needed to say. You will never regret it, I promise. Thinking of you and your family sue x
