My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
I usually read both threads and reply on whichever one inspires me! I'm glad Mum is a little better but I think it is so brave of you to acknowledge that this improvement may only be temporary. Whatever happens, I hope she is not in pain and that you can continue to spend time with her. Your presence must be so comforting for her. Keep being strong!
Hope everyone else is doing OK. Paul is a little tired as we had quite a busy weekend and it doesn't take much to tire him out these days but he is looking forward so much to our holiday in Scotland on Saturday. The only fly in the ointment is that my Dad is still in hospital and still suffering badly from nausea and sickness but after my sister had a few stern words, the staff do seem to be looking after him better now and the Consultant has promised my Mum that they are doing a complete review of all the medications he is on to try to find a regime that will alleviate the Parkinsons symptoms and keep the nausea under control.
Hope the lovely weather we are having just now holds up for you and Paul coming up, is it Loch Lomond that you are coming too, its so gorgeous there you will love it, if you are down the ayrshire coast give me a shout and maybe we could go for a coffee. Martin like Paul is very tired just now, just keep praying that it is coming off the dex.
Got Martins next ct appointment through today monday 13th july, phoned straight away and changed it to the tuesday 14th not that I am superstitious LOL.
Hi to everyone old friends and new !!sorry not beenable to post for a few months Dad been so on another horrific part of this roller coaster ride I wish we could all get off. Hes back in Hospital again with yet another chest infection,hes struggling to breathe on Monday I thought we were losing him as the doctor came in to discuss how they dont resusitate terminal cancer patients!!Today he is a hell of alot beeter he being pumped with antibiotics and on oxygen but at least hes not grey and cant breathe.The Mc millan nurse at hospital said its all due to chemo killing all white blood cells currently at 0.9 should be 4.0 min!!Life is really difficult for him at the moment he keeps saying hes had enough ,hes now nearly imoblie has a wheelchair(his biggest fear when this all started in October)stair lift which the kids love!!But hey ho tomorrow is another day may it bring peace,love and hope for all of our loved ones no matter where they are in this horrible illness . Love Debbie
DDAgent - I'm sorry to hear that you dad is struggling this week. My mum is also very breathless at the moment, also due to low white platelet counts.
But, this is a very cautious slightly happier post from me tonight. Last Friday my mum's husband said that there was a slight glimmer that my mum wasn't feeling quite so dreadful. Well since then she's made little improvemnets every day. She had her first visitor for more than 6 weeks on Monday. She's gone for a short walk to her village shop for the last couple of days and today I went to see her. I asked if she felt up to me bringimg my 4 year old and she said yes - she hasn't seen my children for nearly 8 weeks now. And is actually thinking she might try and get up to mine for Sunday lunch in a few weeks time. Don't get me wrong she is still very poorly but I think it looks like she is finally coming through this horrible period. She saw her Consultant yesterday and he's going to discuss with them in a fortnight about what to do next with regards chemo. That'll be tough as I know she doesn't want to feel as ill as she has been again, but also doesnt want to say no to anymore chemo, as that's her only lifeline of "beating this disease" (her words, still not sure whether she realises exactly what her outcome is going to be anyway). But anyway a slightly happier me tonight!
Debbie, sorry to hear your dad is so poorly again this such a horrible evil illness, what it does to all our loved ones, your post amazes me re that they will not resusitate terminally ill cancer patients that is shocking, love to you all. xxx
Sallye, glad your mum is feeling better, that will make you feel better too, and your kids getting to see their gran fantastic, long may it continue. xxx
Lorraine, hope things are better for your mum and hope you and Scott are enjoying a little bit of quality time together. xxx
Lesley, has that bar manager gave you your phone back yet lol xxx
Becca, if you are reading hope you are enjoying sunny Italy. xxx
Joan, are you ok not heard from you in ages been worried about you. xxx
Julie, sorry to read your sad news last night, speak soon. xxx
Emma, Diane, Carrie, Jay, Eileen, Rona, Susan and everyone else love to you all.
Sun away today :( off to do a little shopping when Martin gets up, he has been up all night and now he is asleep did any of you folks have problems getting off the dex.
Hi Sally. I'm glad to hear your mum is slightly better. They sound like pretty important steps to me. I know what you mean about seeing very small things as improvements. We have noticed my Dad is better this week than when he was taking the temodal the previous week, but he is still pretty awful so really it's not saying much!
I've been trying to read all of the posts and made several attempts to update. These have been two most difficult weeks. To the ER twice with what is now being diagnosed as mini-strokes with hubby. He lost the use of his left arm and hand and was terribly disoriented and had no concentration. We were to begin his 300 mg of temodar this Monday, but the oncologist has delayed that until we see how his recovery proceeds. He has regained some strength, but he is so exhausted that he is taking two naps a day to catch up. The MRI that was done on the 26th of May in the ER says that there is a mass present that is 2.7 x 1.9 cm. This is most disturbing and frightening. Since the surgeon told us he removed 99% of the original tumor this is either residual or a new tumor. We will see the surgeon to get an explanation of the MRI results this week. We are just terrified that the beast has returned. Our prayers go out to each who are sharing this same burden. Will post when we talk with the surgeon. Each day, each hour is a real struggle.
I've been trying to read all of the posts and made several attempts to update. These have been two most difficult weeks. To the ER twice with what is now being diagnosed as mini-strokes with hubby. He lost the use of his left arm and hand and was terribly disoriented and had no concentration. We were to begin his 300 mg of temodar this Monday, but the oncologist has delayed that until we see how his recovery proceeds. He has regained some strength, but he is so exhausted that he is taking two naps a day to catch up. The MRI that was done on the 26th of May in the ER says that there is a mass present that is 2.7 x 1.9 cm. This is most disturbing and frightening. Since the surgeon told us he removed 99% of the original tumor this is either residual or a new tumor. We will see the surgeon to get an explanation of the MRI results this week. We are just terrified that the beast has returned. Our prayers go out to each who are sharing this same burden. Will post when we talk with the surgeon. Each day, each hour is a real struggle.
Grantsnana Don't be too despondent our daughters BT or "little nasty" as she calls it returned very quickly after chemo and radiotherapy- she had gliadle wafers inserted and the last scan showed no new growth- so there are other treatments they can try Love Dianne J
Dianne J.. I am so glad to hear that your daughter got good results from the wafers. We had been told that it may be our next option if the "beast" as we call him, returns. My husband's age is a really negative factor in his treatment and his prognosis, but giving up is not an option. We plan to fight until there is no fight left.
I'm so happy for your daughter and your family. I will be praying for all of you.
