My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Hi Carrie- you never miss anyone out - a message for everyone - you obviously know how much we all appreciate a personal message. Hannah has been doing ok with the exams although she only did a couple at school then had a bad day started feeling really sick- had to go to the loo accompanied by the invigilator- she said it was funny in a way because you can't do it quietly when on chemo. So she has since done them at home- they are lovely with her she even came into the lounge today mid- maths exam for a lie down- accompanied again in case she cheats! who else has done their GCSE's in pj's ! Hope every one else is ok. Dianne J
Dianne - your description of Hannah taking her exams in her PJs made me smile. I'll think of that when I'm at work tomorrow (I work in a school) and try and imagine all our Year 11s taking their exams in PJs too.
Hi I have at last done a profile, I found it difficult as there is so much I could have written. It doesn't get easier it gets harder we would like our lives back to what they used to be! expect that is everyones wish. Hannah is doing her English exam at the moment I feel that I have to keep quiet- In her PJs again at least she hasn't come out of the room today to lie down -or ask " What's for lunch mum ?" !
Ive just quickly logged on from work as i feel like ive abandoned this site and all my friends! My computer at home is down, not sure when itl be fixed...i feel like ive lost a limb!
Cant stay on and havent had the chance to read back but will do so when my comp is up and running again.
Lorraine - have got the gist that your mum has deteriorated hugely this week. I am so sorry my friend, your a fantastic daugher and your mum and dad will be so proud of you. I was logging on to see if you were going to the BT group tonight, but obviously not, so I dont think i'll go as im finding it difficult to get a babysitter as paul is at football. Thinking of you lots and lots...Ive also lost my mobile phone so cant be in contact with any of you in that way (Gayle, Becca).
Love to you all, sorry this is such a quick random post, lesleyxxxx
Ive just quickly logged on from work as i feel like ive abandoned this site and all my friends! My computer at home is down, not sure when itl be fixed...i feel like ive lost a limb!
Cant stay on and havent had the chance to read back but will do so when my comp is up and running again.
Lorraine - have got the gist that your mum has deteriorated hugely this week. I am so sorry my friend, your a fantastic daugher and your mum and dad will be so proud of you. I was logging on to see if you were going to the BT group tonight, but obviously not, so I dont think i'll go as im finding it difficult to get a babysitter as paul is at football. Thinking of you lots and lots...Ive also lost my mobile phone so cant be in contact with any of you in that way (Gayle, Becca).
Love to you all, sorry this is such a quick random post, lesleyxxxx
Have you lost your phone in the pub again deary deary, Lorraine and I thought you were ignoreing us lol, we decided to leave the meeting till the next time too, with everything going on just now, call the barman and you will get ur phone lol. xx
love to all my other lovely friends, thinking of you all.
Dad is now into week 2 of his radio and chemo.... he was quite sick after first couple of days but seems to have settled down now. He is getting more and more tired and his walking seems worse but the nausea seems to have stopped and only side effect now is fatigue which is not too bad.
i do find myself thinking what happens when the radiotherapy finishes will he have a good few months being ok etc etc but i guess its best to take 1 day at a time.
I hope everyone else is doing well and everyone in here is in my prayers everyday
I am off work today as most of you know I just work 9 days out of 10 each week so today is my day off, I am off Fri/Mon too with Scott as annual leave I wish I could say things could be so different and we could go away for a few days like last year at this time when I took him to Dunblane Hydro for his birthday his birthday not until 20th June but he stocktakes then so I always have to try and do something nice with him early June so thats why we are off but due to Mum we won't be doing anything, amazingly after the antibiotics have kicked in she has started eating again little portions and it has to be soft as with her having all the phlem from this chest infection that can't clear she struggles to swallow and coughs alot when getting fed its just so sad folks as she has been in bed now for 3 weeks she actually said to Scott last nite oh what a life ! she slept most of yesterday but was wakened for an hour or so last nite, I just have to take each day as it comes, I know within my heart that I don't think she has long and on Saturday I would not given her much for to see this week through thats how poor she was so folks I will just say once more this is the biggest rollercoaster of my life that I think I have been on and will ever be on again.
Gayle - How is Martin doing now? I completely understand re last nite, I would also have been away from home all day and I just don't have it in my heart to do that at the moment, we will meet one day my friend, chat soon love to the 3 of you from all of us.
Lesley - Have you tried ringing your phone thats what I do when I loose it to see where the hang it has been left, I am doing so much daft things the now just my mind not on it, it is so hard pal to meet the now as we have so much going on but I know like I said to Gayle we will.
Emma - Hope first day back at work for you went ok, thanks for your message honey you been through so much yourself yet still there for others, your a gem, hope to chat to you soon and love to you and the girls.
Diane - Hope your doing as well as you can be under the circumstances can't believe it will nearly be a month since you lost your hubby you wonder where it all goes eh thats 2 years we been living this nightmare now sometimes it feels like 6!
Rona - WOn't be long until you get home beside your Dad, bet you can't wait.
Carrie - Your posts always amaze me how you can write to everyone, hope your doing ok.
Eileen - Thanks for your message re Mum, hoep things as well as can be at your end.
Julie - Please let us know about Stephen when you can think of you lots.
Susan - Not sure if you read here or WTBT but just thought I would say hello and hope your Dad has improved a little and bet your looking forward to your holiday with Paul.
Well folks I am away to jump in the shower and tidy the house a little then it will be a day with Mum and Dad not sure what that will ential all depends how my angel is today but I am sure she will be happy as she has her girl off work and home beside her, and thats where I feel I do belong but for now I am trying to persevere at work even though its so hard they know though that at anytime I might (well I will I know that) need to be off.
Michael, everyone is so different its difficult to say how your dad will be. My husband sailed through the chemo/rt and had loads of energy wanted to party everynight and go to night clubs this continued for month aftert the treatment finished and then extreme fatigue, then the high dose tmz started and that caused even more fatigue, hope this helps you a little. xx
Lorraine, so nice to hear that your mum is eating again, our prayers are working hun, hope you have a nice few days off and hopefully you and Scott will manage to get out for an nice meal together and you get to spend lots of time with your mum. xxx
love to all my other lovely friends, I am thinking of you one and all.
