My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Diane, much love and prayers are coming your way from the US. My heart goes out to you. Keep strong and know that you are being thought of and prayed for along with your family.
Diane - You have become a friend to me over the last few months your support and messages are always so helpful and full of warmth, I send you so much love and strength to get you through the days ahead, will hear from you in due course and until then I am thinking of you and your family so very much, love from Lorraine and Scott xx
Diane, I am so sorry to hear of P's decline - you have been an amazing all the way through this - I felt the same but somehow from somewhere you will find that inner stregnth & will get throught it. Big hugs to you and your family - thinking of you xxxx
Diane i am so sorry also to hear this sad news, im Sorry i have no advice but i hope with all my heart you are ok and things get better.
Sending huge hugs and so much love to everyone also x x x x x x x x x x xx x
tomorrow i am meeting michael mcintyre :) very excited. The new round of tzm is going better then i thought, i dont feel great but not nearly as sick as i thought just a little bit icky.
just logged on and was so sad to se your post - can only echo what the other ladies say - thinking of you and P and your family tonight and wishing you peace in your poor heart - It is a hard journey and none of us know how it will be to see it through - you've been a source of great advice and affectionate support for others and made all of us better at times - you notice how other people are and have such empathy - hope it helps to know that we're all 'with you' where ever we are tonight - these saddest times become group vigils, don't they? hope you feel all the love coming through to you this evening and a lot of people holding your hand .....
It must be frightening and overwhelming but your strength will see you and yours through - Wishing P a quiet and peaceful night and you too, you're in all our prayers
Diane, your very much in my thoughts this morning - sending you lots of love.
Just on my way up to hospital again. An ambulance came a wee while ago as my dad has got dysphasia, took a seizure and his nose has been pouring of blood all morning. Hope its just another blip.
Love to everyone, hope today is as peaceful as can be for you all and big hugs to all those going through an extra tough time, will try and catch up later.
I hope I can be forgiven for sounding very exultant today when I know some people are having a very difficult or sad time but I have some good news to share. We went to the hospital this morning (huge new hospital in Derby which only opened yesterday) and despite my fears and pessimism, the news was good! The MRI scan taken 2 weeks ago shows a 50% reduction in the tumour size! So I was getting myself all worked up about nothing. The Doc said the increase we had noticed in "wobbliness" is probably a physical caused by muscle wastage in the legs so said again that Paul should stop the Dex. He had only restarted taking it at the weekend and only a very low dose. The Doc said there is no need to take it at the moment because the scan shows little or no odoema. The Doc doesn't want to see Paul for for another 3 months so we can relax and enjoy the summer. Tonight, we are going to sit down together and plan out our holiday to Scotland.
Now we just need the balloon trip to happen! I'm not holding my breath for tomorrow as the forecast is for strong winds in some parts of the country.
