Glioblastoma Why Why Why <br/>

Hi Gayle.

We will have a long wait too as Paul's next appointment to see the Consultant is 7th May and it's only at those appointments that we get told scan results. It's frustrating isn't it? Since I am due to see the GP on Friday I had thought of asking whether he has any way of finding out the results before 7th May. Knowing Paul, he won't even ask what the scan shows and if he doesn't ask, I don't think I should as I have always said that I respect his right not to want to know. If the GP can find out for me then hopefully I'll be able to get the results myself before the 7th.

When we had appointment through for the next scan it was originally for 21st March, a Saturday even though the Consultant had stipulated that he wanted a scan doing just before the next appointment to see him. I rang up and got the appointment put back a month but it still means a wait of 2 weeks.

xx

Hi folks,

Seems like ages since Ive been on and its probably only been a few days -
I think the immeasurable sadness that has come to a few of our people over the last few weeks has affected us all and our wee thread, more than we know.

Just wanted to let Carrie and Emma know that Im still thinking of them lots and send lots of hugs and strength to you two brave ladies for Thursday.

Gayle - hope your managing some sleep tonight, tomorrow will be over before you know it - what a long time you and sue have to wait for results, that's awful...putting you both through weeks of worry. We got my dad's results on the same day which was pretty good i suppose. Talking of 80's groups, ive just got tickets to see duran duran at Edin castle in July....i was majorly obsessed with simon le bon when i was about 11, dont think im over it!x

Becca - sorry to hear your feeling down love - so damned awful to see the deterioration in your dad. We were the same with my dad's 60th the other week - took loads of stuff up to the hospital and tried to be so jovial for him, in reality my heart was just so sad for him wondering how the hell it ever came to this. If feeling a bit maudlin just now...were still staying here just now and watching him unable to move and just watch telly all day makes me want to cry. Were allowed to be a bit miserable now and then on here (not all the time mind lol)!! big hugs. x

Eileen - Hope your hubby is doing okay - conservatory sounds lovely, somewhere you can both chill out - just in time for summer with a glass of pims! So your gran was a leither too...do you know where she stayed? Ive lived here all my life...could never leave, I love it so much! Some of my dads family came from Lochend too, what a small world eh. Do you and Rob ever go to the Brain Tumour group at the Maggie centre, its on once a month and Shanne takes it. We've never been, kept threatening to go but never quite made it. x

Christie - you sound like your doing so so well - lovely to hear from you and what your up to - working and tatoos? there aint nothing stopping you is there - so good to hear.

Lorraine - Hope your mum is doing okay just now?

Well my dad's leg is still the main problem just now - his head is not tooo bad, although his speech tonight wasnt the best, if it wasnt for this damned DVT in his leg (along with the cellulitus infection he picked up in hospital grrrr) i probably would have been able to get him out in the car - its just so unlucky for him. The district nurses still come in twice a day too to give him the injections to thin his blood.

Im with you becca, hopefully next time im on im a bit happier!!

Love to Julie, Joan, Izzy, Diane, CH, Jay, Debbie and everyone else i may have missed.
Lesley xxxx

Hi everyone

Just thought I would try and catch up with you all. It seems ages since I did this properly. Had a day shopping with a friend today. The first time since last summer. Bought a fab red bag (went out looking for a neutral coloured one for summer!), a cardigan to wear on Thursday, which is a lilacy pinky colour (I wanted something brighter to wear over my black dress and some black shoes, also for Thursday, which I am now wearing trying to break them in.

I’m ok, apart from a stinking cold, but not really sure how I’ll be on Thursday. It will be lovely to see everyone, just so sad about the reason we’re all getting together, and the fact that B won’t be there. Oh yes, I bought some waterproof mascara today too.

Gayle – Ultravox tickets this week, Martin has been doing well with the competitions he’s entered. I’ll be thinking of you tomorrow, even if it is a while before you get the results.

Lesley – Hope your dad’s getting on well with all of our equipment. It can make such a difference. Our stairlift was taken out today, so everything has gone now. Just got to clean up tomorrow now, before everyone descends on Thursday. Hope your building work is coming along ok. Did I read somewhere that Amber and Joe were poorly? If so, I hope they are getting better now.

Lorraine – Hope your mum’s doing as ok as she can. Thinking of you all.

Eileen – Thinking of you and Rob. How’s the conservatory progressing? It will be lovely when it’s finished. B wanted to get French doors fitted to our living room so he could sit by them and look at the garden.

Becca – so sorry to hear you’re feeling so down at the moment. I know what you mean about crawling under a stone, I’m just starting to slowly come out from under my stone, but I think I may be sneaking back quite often. The big wide world still seems quite scary when I’m on my own. Sorry too to hear that your dad’s not too good. It’s so hard watching them when not so long ago they had been so active. Sending you a big hug.

Sue 206 – hope the scan goes ok next week and that Paul’s more cooperative. I’ve just read your post on WTBT about being realistic. I got to a point where I wanted to know what I was up against. Having been totally shocked when my dad died, I wanted to have an idea of how thing might progress for B. I have found great comfort in the fact that I spent as much time as I could with B during the course of his illness. In the latter stages too, although it was upsetting at times, it helped me to know when he was likely to be near the end. I hope I haven’t upset some of you by saying this, but having got to the stage I am now, I know this all helped me to start to come to terms with what has happened.

Rona – Glad to hear you’ve arrived home safely. Hope your dad’s doing ok.

Christie – Glad to hear your RT has finished and your life is (sort of) normal at the moment. I bet you’re looking forward to Alton Towers. My oldest went there last year with a few friends and had a fantastic time. He said Oblivion was ‘class’. What tattoo are you getting?

Jay – Hope you’re starting to get through the mountains of paperwork. Have you booked the holiday yet?

Sue MW – Hi and thanks for sharing the lovely poem.

Joan Julie CH Izzy Lisa Debbie Diane and everyone else, thinking of you all too.

Oops, sorry everyone, another long one! Must get to bed now as I’m finding I’m going to sleep later and later now.

Emma – Thinking of you especially.

Carrie x

Hi folks just a quickie!

Mum took another seizure last nite, fortunately she not in hospital 5!! paramedics came and worked on her and she came out it ok that as they waited in the house we put her to bed and she as fine thur the nite, I wasn't thought slept with my t-shirt and jeans on incase Dad phoned saying she had taken another one, she knew it was happening as she said she was not right and she felt very weak, so so sad to see the Mum you love decline slowly in front of your eyes (don't need to tell you's that as you will feel the same with your loved ones eh), anyway folks I am in my pj's ready for bed and hope I sleep tonite as last nite seen every hour and was on the dam minute taking for my meeting at work today god knows how I will manage to type them back up in English!

Gayle - Thinking of you tomorrow hun, like Lesley when Mum got scans we knew the same day apart from once when we had to wait 6 weeks for a phone call to say Stable, don't think Mum will be getting another scan as she too weak now to go thru it all and lie down under a machine etc, I have everything crossed for you and Martin, take care and will be in touch soon.

Lesley - Sorry to hear about your Dad, I so wish I could get Mum out in car too but just impossible, no wonder we feel so down when we remember back to what they used to be like I can' help but look at photos of times gone by when life seemed so care free back then now I worry when I hear my phone ring if its gonna be a seizure,, speak to you soon hope the kiddies are ok and a big hug to your darling Dad.

Becca - Same applies to you hun its so hard when they have a special birthday eh and they not the person they were before this horrible illness took hold, thats lovely that your friend has asked you to be her bridesmaid, I am seeing my best friend on Thursday the big funfair is thru at Kirkcaldy near to where we live as we gonna have a walk thru it and maybe have a toffee apple, I make a point in seeing her every Thursday as she like a sister to me and its great just to have someone to speak to she has a little girl Aimee who is 2 and she is so lovely so I always have a nice evening on a Thursday, not long to your race now girl! take care of yourself.

Susan - Hope you and Paul are ok, good luck for docs on Fri.

Carrie and Emma big hugs xxx

Well folks off to the land of nod - lets hope, thanks for all being so lovely people :)

Lorraine xx