My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Lovely day here again, we are off to see ultravox tonight, Martin won tickets on the radio last week, he is soo proud, then after that we are off to our holiday caravan for a few days, to let Martine have some fun with her friends, be home on wednesday for Martins next scan, scary times these scans make me so ill........anyway folks hope you all have a lovely easter, for those of you who can, speak to you all next week.
Emma and Carrie sending you both lots of love and hugs.xxxxx
hi Gayle, hope you enjoyed Ultravox! you have great caravan weather now so enjoy! quiet on here today, page 2 - got to sort that out. love to Emma, Jay and Carrie, sending you all more strength to get through, you are in all of our thoughts, take care love, diane xx
just popping on to say a quick hello and to say I'm thinking of you all. I have been away over Easter so just catching up now. I hope everyone is ok. I've just spoken to my Dad and he is getting quite fed up with being so tired as he's unable to do anything really. I do hope he gets a bit more energy soon.
Gayle hope all goes well for the scan on weds. Horrible times I imagine (we still have the first one to come but I imagine it is always a worry)
Thinking of you Emma & Carrie. Thanks for posting on here even with all you are going through. Big hugs xxx
Just pop'd on to say Hi to everyone & hope you are all enjoying your Easter Break. Gayle hope you enjoyed the Ultravox concert (don't know how you manage to get Martin there??) bet you'll need the break at the caravan after.
We had the Grandkids over yesterday and the boys so it was a house full but Rob managed to stay awake and appeared to enjoy himself although he had a bad night and is very tired today.
Squad arrived to start the conservatory this morning, didn't know they were coming? anyway they are here now and our peaceful day has been converted to chaotic. Gluttons for punishment eh, but it'll be worth it in the end.
Rona hope you enjoyed your Easter in NZ and that your Dad is ok.
Love to everyone especially Emma & Carrie, still in my thoughts.
Have had no time to post at all in past few days so i hope you are all as well as you can be! Gayle - hope that insomnia has relented and you can get back to a normal pattern. How was ultravox? xx Lesley - hope you had a good night on Friday and didn't suffer the day after! Hope dad is well and enjoying being back home, can totally appreciate how good it is to have him back and out of a ward. Hope the kiddies are better...have they passed on all the easter chocolate on offer?? xxx
Well dads 60th was yesterday, we tried to make it as special as possible but I dont think dad really understood. We covered the house in bunting, balloons big '60's everywhere to make it as visual as possible for him, but in the end I think it was really more for us. The decline in recent weeks has been heartbreaking. I also think his vision is starting to go - he cannot focus as well anymore and i think his peripheral vision is not good too. He lacks the energy to move very far and doses much of the time now. His headaches are more common and he was stiffness all down his left side (tumour on right side of brain). He apologises all the time for being a nuiscance - which sets us all off! My mood has been quite low and despondent for some time now and im prone to bursts of anger then floods of tears. The world just keeps going on all around me... my best friend got engaged and asked me to be her bridesmaid...im so happy for her and grateful that she asked me, but i can only just muster up some excitement for her. I take pleasure in very little and would really rather crawl under a stone and hide away sometimes.
Apologies for this self indulgent mess of a post.
Emma and Carrie, you are very much in my thoughts. Carrie - hope the sun shines for B today, your very special to this thread and know that everyone is sending all their love xxxx Emma- Love to you and the girls for tomorrow, 400 people are turning out for an amazing man xxxx
Love to all (hopefully next time im on i can be a bit more jolly)
Becca, you have nothing to apologise for. These discussion threads at this wonderful site are one of the few places where we can come and tell how we really feel in full confidence that the other regular readers and posters know just how utterly c**p life gets to be sometimes. I am so glad that your Dad enjoyed his birthday party but sorry to see that he does seem to be declining. Hugs to you. xx
Gayle, hope all goes well with the scan tomorrow. They are always traumatic events, mainly because of the fear of what the results might show but I also dread the scan itself. We had a bad experience with Paul's last but one scan when there were problems getting the contrast die into the vein in his arm and he threw a horrible tantrum and walked out then had to be persuaded to go back in. At the last one, they didn't even bother trying to get the contrast die injected and just did the scan without it. His next scan is next Tuesday and I'm not looking to it at all but dreading the results even more.
Carrie and Emma, thinking of you both and hope you find comfort and strength.
Enjoyed the ultravox concert very much as did Martin, the only thing was everyone was dancing and jumping about, never sat down, I know this annoyed Martin as he could not join in!!! The staff at the armidillo where absolutely fantastic, as soon as we arrived they took us straight through the side door to our seats, they even changed our seats to make it easier for us I thank them very much. Well we came home today from our caravan, Martine still there with friends, enjoying herself, we are preparing for tommorows scan, I feel so sick at the thought of it, we dont get the results until 27th april, what wait that is going to be.
Diane, hope things are well for you all. xxx
Eileen, glad to hear that your conservatory is being started, hopefully it wont be long till you and Rob are sitting in it enjoying the lovely summer weather. xxx
Becca, so sorry to read about the difficult time that you are going through at the moment, hopefully you all had as nice a time as possible at your dads party (((((bighugs))))) I have felt the way you are feeling many a time, this is a rollercoster journey we are all on so many ups and downs. xxx
Carrie, hope your are bearing up ok, an getting plenty of support, I will thinking of you on thursday.((((bighugs)))).xxx
Emma, thinking of you and the girls at this sad time for you all, I will be thinking of you all even more on thursday (((((bighugs)))).xxx
Lesley, hope all is all ok in the capital and hope your still sitting in the garden with your vino. xxx
Lorraine, hope all is ok with yourself, your mum and dad and your beloved Scott. xxx
Joan, hope all is well with you and David. xxx
Rona, hope you enjoyed your easter break. xx
Izzy, Christie, Sue, Suzanne,Jay, CH and everyone else thinking of you all, hope everyone who could had as nice an easter as possible.
Our posts crossed there, how long do you have too wait for the scan results, I feel we have a long wait everyone else seems to be told on the same dayor the next day.???
