Glioblastoma Why Why Why <br/>

Emma - No words can describe the sorry in my heart that I feel for you on the loss of your darling Matthew, thinking about you so much at this very sad time.

Well folks I post again from Mum's pc as I am with her the now, Mum sleeps alot more now and hardly says two words, its so very hard to see her decline like this, life can just be so very cruel and none of us deserve to be doing thru this but I suppose we all need to try and just get on.

Gayle - If you text Emma please send her the biggest hug possible, hope your doing ok and hope Martin is over his chest infection, will speak to you soon my friend, love to you, Martin and Martine xx

Lesley - Hope you have had a lovely Day with your Dad, such a shame that he was still in the Western, any word when he will be getting home? I e-mailed Shanne and Paula Boyle today about Mum as she has not had a scan since Aug 08, but I don't know how she going to get one as she housebound but I was honest and said that I don't think she would be fit enough to go thru with more treatment if that was an option, these last seizures have certainly taken their toll on her. Hope Amber has calmed down after her party, poor wee soul they just get so excited at that age eh, maybe see some pics on facebook later, well my friend I hope your Dad has had a good day take care, speak soon xx

Carrie - Also thinking of you and sending you a big hug at this sad time.

Lisa - Don't think we have spoken but sending you warm hugs at this time.

Izzy - So sorry to read your news yesterday, life is just so dam cruel to the nicest of folks.

Diane - Hope things are reasonably ok your end, your going thru a hard time at present too.

CH - My in-laws are in Holland the now but I am not sure what part of Holland, they kept their trip quite low key I think as my hubby and I can't get away abroad re Mum people don't like to rub salt in the wounds as they say, so my mum-in-law did not say much about the trip at all just a text to say they had arrived.

Susan - Hope you def get your balloon trip on the 16th, I know what you mean about wanting to take Paul far away from all this, I feel the same with Mum you just want to have them forever but thats 2 years in May since Mum was diagonsed and even though she has declined she is still here and for that I have to be grateful.

Becca - How is things going with your Dad?, thinking about you lots.

Christie, Eileen, Julie and everyone else who posts on this thread your in my thoughts all so very much.

I have been part of the other thread WTBT for nearly 2 years, met lots of lovely folk and what they have had to endure in the last 2 years and what you folk on this thread have went thru has been amazing and we have all found the strength from somewhere to carryon or maybe even each other as its brilliant the support that is given, I do post on this thread sometimes too as alot of my scottish buddies mainly post here don't you gals !!

Take care folks Lorraine xx

Emma - Im so very very sorry to hear the sad news about Matthew. Words cant express the sadness I feel for you all but please know that we are all here for you day or night. Matthew has been such an inspiration to everyone on here and will continue to be for a long long time to come. He was such a fighter and he will be sorely missed by people who didnt even get the pleasure to meet him. Sending you and the girls love and strength. xxx

Lisa - so very sorry to hear the sad news of your father - sending you all love and strength tonight too. xxx

Izzy - was very saddened to read your last post - thinking of you lots and pleased to hear Blair is doing ok. xx

Carrie - sending lots of love to you right now too. xx

Lorraine - sorry to hear of your wee mums decreasing mobility - it is just so damned cruel. I loved your fb photos - your mum looks so happy and lovely. ...if only we could turn back the clock - speak soon.

What a very cruel world we live in - we have seen so much tradgedy this week and its so very unfair. It is lucky we have found each other to try and help us through this b****** of an illness...i so wish everyone of us had never had to find each other in the first place.

Thanks to all you lovely ladies, gayle, julie, becca, lorraine, eileen, Joan and everyone who wished my dad a happy 60th....i have gave him a big Mac hug from you all...although i think he was too interested in trying to impress the lovely nurses who also have him a huge birthday cake! I gave him a big canvas of me, him and my mum from a black and white photo from when they were 27 and i was 3...its taking pride of place up in ward right now!

thinking of you all xxxxx

THANK YOU all for your kind words - I am empty- heart broken and I just dont know how I am feeling -
his brother, mum and i were all there at the end, would you belvie he died at the same time and same weekday as his dad? that has given me some sort of comfort. For those that manage to keep their loved ones at home at the end hats off to you - we just couldnt damn bt kept changing and we couldnt keep his pain under control. I can honestly say i have no what ifs and thats what we wanted - its been a rollercoaster of a week, we htought we had lost him sat - we all cried our eyes out for 2 hours when his breathing was sooooo shallow - then he woke up said he needed a wee in his weak voice - when i came back into the room he was sitting on the edge of the bed, I held his hand as he was aggitated and wanted to 'get on' he pulled me too him gave me a kiss infront of the nurses and said I love you - that was the last thing he said - I WILL NEVER EVER FORGET THAT
MATTHEW I LOVE YOU & AM VERY PROUD TO OF BEEN YOUR WIFE
HIS FIGHT LIVES ON IN ALL OF YOU - NEVER EVER GIVE UP THE HOPE - HE NEVER DID XXXXXXXXXXX REST IN PEACE I WILL LOVE YOU FOREVER XXXX

Emma - I am so sorry to hear of Matthews passing. Just keep focussing on the love you had for each other, That, my boys and the lovely things people have said about B are what's keeping me going at the moment.

Lisa - Really, I'd like to send the same message to you too.

Thinking of you both and sending you the biggest hugs I can.

I will catch up with everyone soon, but I wanted to thank you all for your messages. They really are a comfort, especially as you all know what it means to live with this awful illness and can understand a lot of what I've been through over the past few months.

Carrie x

Carrie - i havent been able to post over the last few days but managed to read your posts from the hospice tv system - also gayle text me - I am so sorry i didnt post personally - I know that you are as heart broken as me - i cant put into words how I am feeeling but huge hugs to you I hope they meet in a better life and have many beers together xxxxxxxxxxxxxx

Emma, our posts crossed there, you and Mathews love wil never die.

love Gayle xxx

Carre, you to our posts crossed like Emma and Mathew, your love for B will go on forever.

love Gayle xxx

Dear Emma

so sad for you and your girls tonight and for all the family - Can't believe your trouper of a man has gone but like the other girls have said, he'll never be forgotten by those of us who've followed you two on this journey - A man with such spirit, such determination and you beside him every step of the way - So sorry Emma - it must feel so bleak and empty but even now you're shaking a fist at the BT bastard and standing up with great dignity - Thanks for telling us all to keep strong and for sharing that lovely man's story - Those last words and kiss he gave you must be one of the most precious things anyone could share - something beautiful in all this pain -

I still don't begin to understand this thing - this painful, pointless condition - how hopeless and helpless it leaves you feeling trying to stand up to it - The only good thing I've learnt from all this is how strong and brave people can be - like you and Matthew , like Carrie and her man - when pulled without warning from happy 'normal' life , you suddenly have to deal with this cruel and pitiless illness - and you stand up and stay proud - You've been a strong, funny, loving friend on here for all of us and Matthew's been truly an inspiration .. and a man, loving you so much right to the end , who'll never be forgotten. Love's eternal and so are 'twin souls' like you two, and NOTHING can conquer that

Thinking of you tonight and sending much love

joan xxx